Where to go from here/Sugg Welcome

[Padro46]

Sorry So Long,  Just want to know has anyone else been involved with this kind of thing before and if so what can been done to find the answer??



November 2008-- Present Time: Still having minor AB and Chest Pains, Bowel Movements just not the same as prior to Dec07,  Back of the head numbing and brain
freeze/tingling, seems to have also moved to my face and jaw area, seem to be having
some balance issues not always but does happen.  Minor back pains, Brain Fog (Just
seem to be out of it). Vision appears to be worse/blurry up close, (have been to eye
doc no change)  Still tired but not as severe as early in the year, Un- refreshing
sleep, Sore Back(seems to always need popped, Periodical a stopped up head feeling
and very minor pain in and around ears. Will sometimes have tenderness in Lymph
nodes in Neck, Armpit and Groin. There are no factors that seem to change the above
it can be morning or evening seems to progress as the day goes on.  Do not have all
symptoms at the same time but have some of them everyday.   Results of testing are
enclosed for your review.    
                                                  
History I am 47 years of age 6 FT-190 pounds, weekend beer drinker and a reformed
smoker (quit in Jan 07) Up to Dec 07 NO health problems, had probable been to a
Doctors Office 10 times total in my life.  In Dec 07 I was on a business trip in San
Antonio, Tx when I began experiencing symptoms (all of a sudden like someone flipped
a switch) that included the following. Chest Pains and Burning (felt hot to the
touch) Back of the head numbing and what felt like an Ice Cream brain freeze.  I
also had this out of it feeling like a BRAIN FOG.  Not wanting to have a problem in
another town, I left and returned home 7 hours away.  My wife drove me to a clinic
where I was put on a EKG machine and the clinic Doc advised all ok gave me some
Meclizine put me back on Prevacid (which I had been on years earlier) for Acid
reflux and sent me on my way.  At this time I did not have a Primary Doc and made an
appointment with one.  This doc did Complete Labs, and found nothing but elevated
EBV numbers.  Doc advised would look at numbers again in 30 days due to this being a
Virus there was nothing else to do but Time also gave me some sinus sprays.  This
was a REALLY BAD time from the months of Jan-May I felt terrible, Chest Pains which
really had me concerned, TIRED all the time could not wait to get to the bed or
couch, loss of appetite, cold all the time, Dizzy/Lightheaded, back of the head
pain(really bad that a aspirin would not help) , AB Pains, Irregular Bowel movements
(still everyday but not as much product), Facial numbness/tingling, Brain Fog, Did
not want to do anything.  These was of great concern and due to not EVER having
medical issues I returned several times to my family doctor and the following are
the test and medications I have been on during this experience.

Test: Blood Test-X 5   CBC, Comprehensive Metabolic Panel, Lipid, PSA, TSH, Lyme, HEP Panel, HIV Panel, Rheumatoid Arth. Factor, Sedimentation Rate-Westergren, EBV Panel, B-12, Alpha Fetoprotein Serum, H. Pylori. From the months of Jan08 to the last one Sept08

Results:  With exception of EBV numbers (which all Docs say is no longer a concern)
and up and down Cholesterol LDL sometimes a little high--- ALL NORMAL XRAYS and CT SCANS--  MRI-(April08)  Brain(Normal)  November 2008 with Contrast all normal and C-Spine-(May08) (see results under other)
CT scan Heart (Feb08) and Abdominal (June08 Prior to Colonoscopy) ---All Normal
Chest X-ray X 2    (June 08) this one remarked a few calcified granulomas are
present. The Second (April08) listed Brocades otherwise No acute Cardio disease
identified. Colonoscopy and Endoscopy (June08) —Acid Reflux No other problems
identified ENT exam (Sept 08) - All Normal Full Cardio Work-up (Feb08) Echo and CT
scan, Carotid Artery Ultrasound- All NormalL Medications: That I am currently
using—Prevacid, (Acid Reflux) Dicyclomine spastic colon-(only three times did not
like side effects) some natural meds by Dr. Jernigan’s Borrelogen, Nutrametrix-OPC,
Fish Oil Tablets.  Nortriptyline (Pamelor) Not taking----Topamax    Other: C-spine Impression: Neural
Foraminal caliber is low normal or mildly narrowed throughout the cervical spine.
This appears to be the result on congenital factors as I see no evidence of facet or
uncovertebral hypertrophy.  Disc morphology is well maintained, as is spinal canal
diameter.  Have also seen an Infectious Disease Dr. and a Second M.D  2nd MRI of the Brain Neg.  MRA of Brain Neg  Waiting on Lupus Panel

[Padro46]

Anyone Know How Long it Takes For Lupus Panel??

[selmaS]

...sorry, not sure on lupus panel.....can I ask.....did u take a plane to ur meeting in TX?


Good luck
"selma"

[Padro46]

No I drove already in TX

[selmaS]

...thought maybe the pressure was a contributor....did u try the expert forum?

Godspeed
"selma"

[Padro46]

Not yet, But that is probable my next stop.

[Padro46]

Blood test Back,  Anyone Have any Thoughts on This Anti Protense (3) being High Nuero.s P.A. called and said it is of no concern,  My question if not then why run it??

Blood Results,

ANCA Panel
Antimyeloperoxidase (MPO) Abs

                                                   <9.0                                                    0.0-9.0

Antiproteinase 3 (PR-3) Abs             6.4                    High                         0.0-3.5

Cytoplasmic (C-ANCA)                    <1.20                                                NEG

Perinuclear   (P-ANCA)                     <1.20                                               NEG


Note:The presence of positive fluorescence exhibiting p-anca or c-anca patterns alone is not specific for diagnosis of Wegeners. or microscopic poloangiitis.  Decesions about treatment should not be used solely on ANCA IFA results.  As many as 5% serum samples are positive only by EIA,  Follow up testing may be recommended.

Atypical P-ANCA                       <1.20                                                          NEG



Lupus Panel         ALL    NEG   To many to List   all in Range


Basic Metabolic Panel (8)   All Good

Bun
Sod
Potass.
Chlorie
Carbon Dio
Calcium       (Low)

NMO-IgG Serum                          NEG

[Padro46]

Nueros P.A. Said no Concern on Blood if this was the case why do it??

[Padro46]

Anyone know of Wegners??

[selmaS]

http://www.janchristensen.com/tinnitus.html this link has info on Wegners...

[Padro46]

Thank you SelmaS for the response

[Padro46]

Nuero Increased Topamax and Xanax and advised MRI and MRA was clean ANtiprotease was high but no other signs at this time see you in 90 days boy what a downer.  Advised till MRI shows something nothing can be done

[selmaS]

was ur MRI w/wo contrast?........do u have a deff dx?
I know it is frustrating trying to find a dr that can give a dx and then one to treat it....

I hope u get ur answers soon!

Godspeed
"selma"

[Padro46]

MRI has been with both no DX

[selmaS]

did u happen to get a copy of ur MRI's on disk along with the reports?.....sometimes there r issues that NS's and radiologists consider "normal" or incidental......and they may be of some importance. I would suggest getting copies......each dr u go to can have a different opinion....u r taking 2 right now....of ur immediate dr and that of the radiologist.

Godspeed
"selma"

[Padro46]

Thanks for responding, I really thank you for that.  I have both reports and Disk,  The reports say all normal.  The disk I just have I dont know who else to show them to,  I think the Nuero just reallies on the report from the radio if I am correct.

[selmaS]

.....normal and nothing else?.....it just doesn't make sense....and remember it is the radiologists opinion, so u r right about that.....on what is or is not normal......can u view the disk??.....I've looked at mine, they r interesting.

[Padro46]

I have looked they dont mean anything to me (dont know what I am lookig at)  So I have had a totol of 2-brain MRI,s 1 with contrast 1- with out  and 1- c-spine MRI  These were done by two differant machines but read by the same radio  one was in April the other 20 Days ago.  But what can you do you have to depend on them to be right also had a MRA of the brain and neck (blood vessels)    The Nueros P.A. basically has said its probable damage left from EBV or MS has just not shown up yet.

[selmaS]

.....well at least u have the disks and can get another opinion....I was trying to figure out how to upload/download ( I not sure what it is) so I can put the pics in my profile here....if u know how u may be able to get someone that knows MRI's to at least point u in the right direction.

I was able to see my chiari in my brain MRI, and scoliosis in my thoracic spine MRI.

"selma"

[Padro46]

I think the Medical Comm. is so tight that they Radio will not look at them with out a Doc ordering it to get a little piece of the pie as well

[selmaS]

That's a possibility, but nothing ventured nothing gained.....I always think it's worht the effort.....I am sure that's y my dr said I can be pushy....but when u sit back and wait....u sit back and wait and wait and wait.....

do u have an appointment set up for a followup?...what is ur next step?

"selma"

[willie118]

Did anyone check you for any bug bites??? I know they have a lot of new bugs in the area coming from overseas. And with the wipeout of Galveston, maybe something came from there.
Has anyone checked you for any fungus problems??
I had to have  a lung removed for aspergillus.

Willie118

[Padro46]

My primary took like 6 tubes of blood and a cup of urine at my begging is running several more test to include heavy metals, microplasma, Vit D, B-12 again and others Even though he said some my insurance would not pay for I said I would do them, should know next week on my follow- up with him, after that I really dont know.  Today just really tired and the Ice cream Brain Freeze thing going on.

[selmaS]

.well..hot chocolate can counter that brain freeze...lol.....well I hope u find out some answers next wk....did u request copies of the report from the lab?.....u would probably have it by now....u may still be able to request if u want...I get all my labs now.....I did not for my thyroid and I have so many ?'s  and dr not a big help...I am getting labs redone in Feb....and I will get copies this time.

Keep me posted!!

Good luck
"selma"

[Padro46]

Oh Yes I have them all since this began, I have started a three ring binder and have labs and MRI reports etc all together dont know what good it has done me but I have it.