How many cases of acute demylinating encephalomitis have you seen? We are trying to find a physician that has seen these cases and what was done and what was the outcome? This child is 12 years old and suffering badly from it. We need help.
Thanks for writing in.
Acute demyelinating encephalomyelitis is seen in children usually following infection, vaccination.
The first line of treatment is high dose of steroids in order to reduce the inflammation in the brain. The treatment is usually aggressive and is followed by plasmapheresis, medications like immunoglobulins, and cyclophosphamide.
Usually full recovery is seen in 50-75% cases ranging from minor disability in 50-90% cases.
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