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could some one tell me if they think my problem is neurological

by weemarie, Jul 05, 2009 03:54PM
9 years ago (2009) I was diagnosed with an unexplained overactive bladder which would come in flare ups. At the time a physio noticed i had right arm weakness and some of my reflexes were not right. A cat scan was taken to rule out stroke or tumour. My cat scan came back clear. Also going as far back as this i suffered badly from fatigue which i worked through but it was a struggle. Since Jan 2008 i had left leg paraylsis which lasted 8 days and then power returned but I had a problem walking correctly. An MRI showed up 2 lesions in the parietal lobe but one larger on right side and one smaller on left side of brain. My Lumbar puncture did not show up ogli bands but i had raised protein. Cancer was ruled out and the possibility that it was a stroke or Ms was considered. For the next 6 months I suffered from slow walking abnormal gait and numbness/tingling and spasms in right arm. In August i took severe spasm in right arm which lasted 5 mins and 2 weeks later I lost power of right arm. This lasted 3 days but returned but again my walking was even more affected and my walk was very slow and gait wide ( I did not use a wheelchair and i had difficulty using a walking stick as concentrating walking and using a stick was useless especially since i could no longer walk and swing arms at same time although i could do both individually. Another MRI scan showed no change to size of lesions and a stroke had been ruled out All this time I continued walking and exercising thinking that it was strength causing walking difficulties but actually it was my balance that was starting to change. I started veering very badly always to the my left side and trying to walk straight or forward onto my right side became impossible as if a force was throwing me back or to the left side. By October my outside walking became so bad (like a drunk women always going to the left with a wide slow gait) I neded a wheelchair for all times to get out and about but inside I could still walk although walking round furniture as i was always veering to left) A spine mri was clear and Visual evoke test clear at this time. My neurologist referred me to a neurologist who specialised in functional disorder and has tried to say that that is what i have although he will not commit as i have these 2 lesions that they cannot explain. I had 6 weeks rehab 4 weeks ago and there i was at first treated with a functional disorder and i found the neurologist had a different attitude to me as from his other patients who had either MS stroke or other name neurological disease. However after having watched my husband and myself walk down the hospital corrider (unknown to me ) he came to us and said "You are right it is not functional it is pathilogical and anyone with a functional disorder could not walk like that I reckon it is in the cerebellum or brain stem and you are needing a scan that looks closely in slices at this area as something small could be hiding. I am now going to instruct the physios to stop exercising you to try and walk straight as it will not work and the purpose is now to help you be safe'. My husband and myself felt a weight had beeen lifted from our shoulders as someone actually understood. Unfortunately a next meeting with him he said he had looked at my scans and read the notes from the doctor who deals with functional and he said 'No you do not need anymore scans your condition is pathilogical and the lesions are contribting to your symptoms go home and get a good quality of life by investing in a scooter and get about. (his attitude had changed after reading previous notes and yet he was the only doctor who had saw me walk the rest only ever conducted tests while lying on a hospital bed). I came home done what he had said tried to put it behind me and concentrated on taking up new hobbies.  That was 6 weeks ago but 3 weeks ago i took another kind of funny scare. I had been talking on the phone then i went to the kitchen and was preparing my sons dinner and while stirring the mince i stated to sway all over while doing this and then i started to laugh and when i walked i was all over the place. I do not drink, smoke or take anything illegal but my family felt as if i was acting strange. I ended up in hospital again had another scan which had not changed but my walking has change for the worse again i was put back in the rehab ward but i have now been instructed not to walk again. The neurologist came back and said you are not going to walk again and it will get worse and he still maintained the lesions were causing it. This is all that he has told me and i have the minutes of my last meeting that prove he did. The snag I am facing now is another doctor who I attend had a meeting with him only 3 days ago and he told him which he told me was that he says the lesions are not causing it and it is functional and not organic. As you may understand this is all doing my head in and i am back to square one he is telling me something but behind my ack heis telling al the other medical professionsal who deal with my care that he aggess all along with the doctow and his co friend that it is functional. The only thing that has been consistent in all this is my walking has been constantly deteriating on a downward slope with no upwards turns. I am not in any pain as since October i do not even have the tingling or spasms ( i am on 10mg of anitriplyine so i do not know if that would have helped). All though my balance has been the main problem i have only had dissieness which came 10 weeks ago but subsided about 2 weeks ago).
Sorry for the long life story but cann anyone help and tell me where to go from here, I hate being treated as if i am un intelligent.and I hate having lost my ablity to get about. (By the way all movement in my legs and arms are not visibly aFfected. Any suggestions would be very much appreciated thanks.
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