Hi, ran onto your plea to communicate with someone who has the same, or similiar, neurological disorders as you. I do. Almost exactly. However, I do not have access to the internet on regular basis. Please write, or call me, at (517) 548-6759. I too am anxious to communicate with someone who shares such disorders. Have been dealing with this since 1994. Perhaps we could share helpful ideas, etc. Sincerely, Victoria
It could also be orthostatic hypotension which means when you go from a laying or sitting position to standing the blood pressure drops temporarily. It causes head discomfort. It can also cause dizziness and rapid heart rate temporarily..
Not saying you have any major problem, but I had a headache that pounded when changing positions, bending over, coughing. Had an MRI and was found to have a skull base tumor. Don't worry too much, prob is nothing, but I would discuss the nature of the head pain with my doctor. I have always read any change in the type of headache should be addressed. I am glad I found out what I have going on, better to know than let it go. Good luck!
I used to get that ALOT . It was my blood pressure though. Hypertension (high BP) can creep up on you and go undiagnosed for years. Has your DR. cheked for that?