functional weakness

[DANNY444]

Hi I was wondering if anyone could help....
My girlfriend was rushed into hospital several months ago with loss of use down her right side,slurred speech, confusion and body jerking. She had a CT and MRI scan which showed clear and the doctors sent her home four days later with the diagnosis of Functional Disorder??

Since then there has been a vast improvement but she still is suffering on a daily basis with all of the above but not so severe and not lasting as long. We have had no or very little after care, she was due to see a neurologist but the refferal was sent back to the doctors as they are swamped with patients and can't take on anymore and we are no stuck for any help to make her better.

Please can anyone help with what we should do next??

[gerryker]

Just a little update having been released from hospital again yesterday after taking 10 seizures in 1 day i have been told that as its not epilectic seizures im ok and have just to deal with it the consultants words not mine i am so angry and frustrated now and dont feel im ever going to get better

[gerryker]

I was taken into hospital just before xmas this year with weakness all down my right side i was in hospital for five day and a neurologist told me i was suffering from functional weakness since i have got out of hospital i have got worse i cant use my right leg and take fits on a daily basis the medication they have gave me has done absoloutley nothing on xmas day i had a seizure in the pub and was taken to st johns hospital and the doctor had an attitude as if i was faking the whole episode im at my wits end im only 32 and i cant go out on my own i cant walk and have to get my dinner cut up for me i cant sleep properley and get pains in my chest witch cripple me i want more answers in the space of three months ive went from a semi pro football player to a cripple ive fell down stairs and hurt myself gave myself black eyes with hitting my face off brick walls i dont know how much more of this i can take

[kris3112]

i got sent into hospital after loosong the feeling in both of my arms and legs and having slurred speech. i was then taken to a specalist in edinburgh who told me very quickly it was funtional weakness, at first i felt pleased but during my time in hospital i lost feeling in legs 3 times and arms twice the pysio told me not to use a wheel chair because i was to think about not thinking about it and to think positivly, after leaving hospital i have eneded up in a wheel chair because i can now only walk for about 5 hours a day, and i have been paralysed in my back legs and arms on 1 occasion but yet i am still told to think positivly i dont know what to do, it is so scary at 23 to think this is getting so bad i may never walk again. I just dont know what to do.

[runnigmouse]

I have just had the same experince as you however i do have positve tests and the Neuroligist is going to cary out nerve conduction tests to dubble chech for MS I allso have degenerative disc syndrome So the pain is not all in my head! Some of what the doc said makes sense  and mathces my well but the leflet was pants I just want to get better I left with more questions than I enterd with but my parents wher just over the moon with this guy, they said well you wont need your wheelchair any more Like i can just make it go away.

[Raven44]

Well, isnt this fun...I waited one year and 6 months to see a Neurologist because I have symptoms of MS and Chronic Fatigue Syndrome and guess what?? Yes, apparently I have Functional Weakness, what a load of shite! I mean, HOW can someone say its that when you are going through so many muscle spasms in your back area that you are unable to breathe without severe pain/spasms yet the answer above from whoever, has obviously got the same leaflet as I had been given where it lists 'supposed' symptoms, well I will tell you this for nothing, IF what I have is functional weakness then heaven help me because my symptoms are NONE of those described in that leaflet and I have asked my GP to send me to see another Neurologist one who actually deals with MS Symptoms becuase the pillock I saw summed my problem up in just 4 MINUTES. Yes, that is HOW long I was in the room with him and I was wheeled in a wheelchair because my balance has gone, yet he said, Oh are you in a wheelchair? I said, no, I am in a rowing boat, I mean, how STUPID are these people? Go for a second opinion if you feel that your diagnosis is wrong because at the end of the day according to this leaflet, we are NOT believed and it is also suggested that we are IMAGINING every symptom. What a load of horse shite.

[Rasin]

I had my first siezure and shut down at ages 16.Years later at aged approx 40, I diagnosed as having epilepsy even though all tests came back negative.I had a major shut down just 18 months ago and all tests once again were negative. Thanks to a Neurologist I was given the answer to how I felt and all the symptoms  had experienced all those years ago and still have..I am aged 58 and now have a name to how I feel.Functional weakness is real but you can live with it.At last I know what I have.