What to do next? Neurology

[concernedmom111]

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My daughter is 18 and has suffered from headaches her whole life. She gets hives which are auto immune related and takes Claritin daily. She has quadrantanopia  caused by scar tissue from utero on optical nerve and mild non correctable vision impairment and NOW has seizures 2 EEGs normal. So diagnosis is Psuedoseizures. She is seeing a psychologist which she shares frustrations of Doctors not having answers.
Because we are dealing with many fields of expertise...How do I get any ONE of them to put the WHOLE picture together to help with diagnosis? Neurologist stopped headache and antiseizure meds and treats her as a mental case. Where do we go from here?

[concernedmom111]

Finally answers! I saw an excellent neurologist and he pulled all my daughters history together along with reports CT scan and gave me a firm diagnosis of Complex Partial Seizures. She has calcified scaring through the Right temoral lobe with little to no reflexes on left side of body and left sided quadrantanopisa. Because of lifelong migraine signs were masked by treatment for headaches. I feel that symptoms match and feel confident in this diagnosis...However what are the chances of EEGs still being normal?

[S. Kaul, MD]

Hi there!

I would recommend consulting an internist who should be able to integrate most fiends of medical management; and in the situation, where a specialist consult is required, a referral can be made to the concerned doctor, with a copy of the clinical report to the internist,
Hope this is helpful.

Take care!