pain causing seizures

[baci2]

Please be patient while I explain my circumstances. I was born premature and they stuck me in an incubator and put a needle in my head.  I still have the scar but it did not show up on the MRI.  When I was a year old, at a department store, I hurt my finger and had a grand mal seizure.  My mother took me to the pediatrician who yelled at her for letting me hurt myself.  After that, every time I would have an injury, I would have a grand mal seizure.  Examples, when I got bit by a dog, when I fell down a flight of stairs, when I get a really bad charlie horse in my leg.  They thought that I would grow out of it but I'm 31 and I've had 52 grand mal seizures.  In July, I had one when my back popped out in my family doctor's office (I had gone because my back had already started to hurt, then I sneezed and I heard it pop, and then it became extremely painful.)  When this happened, I had a GM right in front of my doctor.  He asked me to see a neurologist as well as a cardiologist because I have a strange heart beat as well.  The cardiologist did an EKG, a stress test and an echocardiogram.  While on the treadmill, my pulse was up to 200 after 6 minutes and they made me get off.  A week later they called and said that everything looked fine.  I decided not to see a neurologist at the time because having seizures when I hurt myself was something that I've always done and they just said that it was my body's response to pain.  Then, in November, I had a seizure out of the blue with no injury to provoke it.  My husband witnessed it.  I remembered feeling extremely dizzy (like always), and it kind of seems like the lights get a bit brighter. I layed on the floor and he said that my eyes rolled back in my head.  Then I started convulsing and a few minutes later when I woke up my pupils were fully dilated and I had urinated.  I was not awake for any of this, for this is just my husband telling me what happened.  Nor was I awake at the doctor's office, for he described the same exact thing but of course, I was unaware of what happened after the dizziness.  Because I had never had one without pain causing it, I went to the ER.  They did a cat scan which turned out normal and referred me to a neurologist who in turn referred me to an epileptologist.  The epileptologist did an EEG and an MRI.  All came back normal except he said that there is something rhythmically wrong with my heart and that I need to have more tests done.  My heart rate kept bouncing between 60 and 110 as I was laying there for about 30 minutes during the EEG.  But my epileptologist said that pain is not a trigger for seizures and that he does not want to set me up for seizure monitoring since I only have seizures 3-4 times a year on average.  He does not want to completely diagnose me with epilepsy because nothing showed up on the tests.  He did up my dose of Lamictal and told me that I cannot drive for a year or take baths alone.  He wants me to go back to the cardiologist for more tests.  Am I the only one out there with pain causing seizures?  Thank you for any patience and expertise in this area.  I feel as if I'm the strangest human being on earth. It seems as if everyone else just yells or says "ouch" when they hurt themselves.  What I wouldn't give for an "ouch" instead of a seizure.  Thanks again.

[sweetdiva]

I keep telling the doctors that my pain triggers my seizures and they keep telling me that is impossible. To appease them I suggested that pain can be exhausting on the body and exhaustion causes seizures.  They are more agreeable to that.  I have a very minor heart condition and and sciolosis.  
After car accidents and returning to work...that is grossly hard on my back, my siezures return.  I fell at work a few months ago and my seizures returned and became uncontrolled.  If I control my back pain I seem to control my siesures.
I am wondering if you have made any head way with your doctors in having them open their eyes.  I am sure there are more of us out there.
I wnat more than anything to get my life back, maybe we can show the medical community we are the precedent setting cases.  After all we are the experts on our own bodies, they have just never came across cases like us or have never given others a serious listen.  
I am going to a world reknowned pain doctor and epilepsy clinic in the winter, they are going to work together to figure this out.  Please contact me if you suffer pain and seizures.  Strength in numbers...maybe they will listen.  

[lover10172000]

my daughter who is 6 has the same things she is taking 600mg of tegretol a day and we thought it was from pain then she would take a seizure out of the blue she has also had EEG's done and MRI and normal there is an abnormalty in left side of brain then she had a cut on her foot i put peroxide on it and she took a seizure and her eyes went really big while she was coming out of it and today she was getting sharp pain in her back and chest pains and again she took another seizure and eyes went huge while coming out what is this i would like to know. I am going to see her doctor on thursday and going to tell them i want more tests done on her this in not right.

[SG757]

I agree this is not right. I have a rare condition that cause extreme pain and eventual organ failure however i have been have what looks like seizures for a few years now I’ve flown to the UK and had specialist assess me in Australia all test are normal and I’m expected to just get on with life ??? Impossible I’ve had 4 seizures this week alone. I def. think pain can cause seizures and it needs to be looked into and research as it can completely control yours and your families life i would love to hear more people opinion?

:)