i have recently been diagnosed with tonsillar ectopia 2-3 mm and i also have a syrinx in my spine... i have massive headaches everyday and have only been to one doctors appointment he has just scheduled me for an mri with csf flow which is not for another two weeks. i am terrified because i have no real answers about what is going to happen my doctor says he doesn't want to do surgery unless its used as a last resort and neither do i however medication isn't working. i am just wondering about everyones knowledge about this issue so feedback would be greatly appreciated ....
also recently i'm having a hard time hearing out of one of my ears and i'm wondering if these are related in anyway.
Hi...u want to be sure u r seen by a true chiari specialist. The CINE MRI which is the flow study is to look for CSF blockage. Blockage and overcrowding along with symptoms is what the drs look at to determine if u r a surgical candidate.
U may want to join the chiari forum...several also have syringomyelia (syrinx)
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.