Neurology Community
tonsillar ectopia
About This Community:

This forum is for questions and support regarding neurology issues such as: Alzheimer's Disease, ALS, Autism, Brain Cancer, Cerebral Palsy, Chronic Pain, Epilepsy, Headaches, MS, Neuralgia, Neuropathy, Parkinson's Disease, RSD, Sleep Disorders, Stroke, Traumatic Brain Injury.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

tonsillar ectopia

i have recently been diagnosed with tonsillar ectopia 2-3 mm and i also have a syrinx in my spine... i have massive headaches everyday and have only been to one doctors appointment he has just scheduled me for an mri with csf flow which is not for another two weeks. i am terrified because i have no real answers about what is going to happen my doctor says he doesn't want to do surgery unless its used as a last resort and neither do i however medication isn't working. i am just wondering about everyones knowledge about this issue so feedback would be greatly appreciated ....
also recently i'm having a hard time hearing out of one of my ears and i'm wondering if these are related in anyway.
Related Discussions
620923_tn?1439824912
Hi...u want to be sure u r seen by a true chiari specialist. The CINE MRI which is the flow study is to look for CSF blockage.
Blockage and overcrowding along with symptoms is what the drs look at to determine if u r a surgical candidate.

U may want to join the chiari forum...several also have  syringomyelia (syrinx)

http://www.medhelp.org/forums/Chiari-Malformation/show/257?camp=msc&personal_page_id=862904

"selma"
CL of the chiari forum
Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Neurology Community Resources
RSS Expert Activity
233488_tn?1310696703
Blank
Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
233488_tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
748543_tn?1371753642
Blank
TMJ/TMJ The Connection Between Teet...
Jan 27 by Hamidreza Nassery , DMD, FICOI, FAGDBlank
Top Neurology Answerers
338416_tn?1420049302
Blank
jensequitur
Fort Worth, TX
620923_tn?1439824912
Blank
selmaS
Allentown, PA
Avatar_m_tn
Blank
Ball123
293157_tn?1285877039
Blank
Wobbly
209987_tn?1418913008
Blank
tschock
AB
Avatar_f_tn
Blank
Katya4