Neurology Community
tonsillar ectopia
About This Community:

This forum is for questions and support regarding neurology issues such as: Alzheimer's Disease, ALS, Autism, Brain Cancer, Cerebral Palsy, Chronic Pain, Epilepsy, Headaches, MS, Neuralgia, Neuropathy, Parkinson's Disease, RSD, Sleep Disorders, Stroke, Traumatic Brain Injury.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

tonsillar ectopia

i have recently been diagnosed with tonsillar ectopia 2-3 mm and i also have a syrinx in my spine... i have massive headaches everyday and have only been to one doctors appointment he has just scheduled me for an mri with csf flow which is not for another two weeks. i am terrified because i have no real answers about what is going to happen my doctor says he doesn't want to do surgery unless its used as a last resort and neither do i however medication isn't working. i am just wondering about everyones knowledge about this issue so feedback would be greatly appreciated ....
also recently i'm having a hard time hearing out of one of my ears and i'm wondering if these are related in anyway.
Related Discussions
620923_tn?1416285879
Hi...u want to be sure u r seen by a true chiari specialist. The CINE MRI which is the flow study is to look for CSF blockage.
Blockage and overcrowding along with symptoms is what the drs look at to determine if u r a surgical candidate.

U may want to join the chiari forum...several also have  syringomyelia (syrinx)

http://www.medhelp.org/forums/Chiari-Malformation/show/257?camp=msc&personal_page_id=862904

"selma"
CL of the chiari forum
Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Neurology Community Resources
RSS Expert Activity
469720_tn?1388149949
Blank
Abdominal Aortic Aneurysm-treatable... Blank
Oct 04 by Lee Kirksey, MDBlank
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Control Emotional Eating with this ...
Sep 04 by Roger Gould, M.D.Blank
Top Neurology Answerers
338416_tn?1413581329
Blank
jensequitur
Fort Worth, TX
620923_tn?1416285879
Blank
selmaS
Allentown, PA
1780921_tn?1416842066
Blank
flipper336
Chandler, AZ
Avatar_m_tn
Blank
Ball123
10389859_tn?1409925468
Blank
Foggy2
900662_tn?1380159390
Blank
johnniebear
chicago area, IL