i have recently been diagnosed with tonsillar ectopia 2-3 mm and i also have a syrinx in my spine... i have massive headaches everyday and have only been to one doctors appointment he has just scheduled me for an mri with csf flow which is not for another two weeks. i am terrified because i have no real answers about what is going to happen my doctor says he doesn't want to do surgery unless its used as a last resort and neither do i however medication isn't working. i am just wondering about everyones knowledge about this issue so feedback would be greatly appreciated ....
also recently i'm having a hard time hearing out of one of my ears and i'm wondering if these are related in anyway.
Hi...u want to be sure u r seen by a true chiari specialist. The CINE MRI which is the flow study is to look for CSF blockage. Blockage and overcrowding along with symptoms is what the drs look at to determine if u r a surgical candidate.
U may want to join the chiari forum...several also have syringomyelia (syrinx)
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