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tortous right vertebral artery ..medulla

tortous right vertebral artery ..medulla

I have type 3 Ehlers Danlos Syndrome. My son has Chiari 1 Malformation and EDS. When his dx was discovered I thought for sure that I had chiari as well. I have most of the same symptoms that he does. I have had an experienced neurosurgeon who knows EDS and chiari examine my MRI's. I've had upright and traditional. No chiari has been found. I am wondering now are the symptoms from the EDS? Or could it possibly be from what one radiologist found on my scan... My MRI states this in the conclusion notes:

Somewhat tortous right vertebral artery appears to indent the right anterior aspect of the medulla. Occassionally such appearance can be associated with the clinical symtoms (symptoms) (expressed by this patient).

My symptoms are: Pounding headaches right side base of skull, When severe they hurt all over base of skull. Never top sides or front. Occassionally unable to put chin to chest whenit hurts most. Balance & vertico issues, double vision, occassional vision loss (fades out like a dimmer), occular migraines, preglaucoma. Ringing in ears( mainly right), Feeling like back side of my head is in a vice, unable to go under water more then a minute without feeling like head will explode, feeling sick to stomach when under water alot, photosensitivety, motion sickness, eye pressure & pain, facial skin twitches. Pain when any pressure is applied to top of head (head bands ear muffs etc). Triggers to cause severe headaches are laughing hard, yelling for a period of time, cold air. If I am laughing hard for example I will hold base of my skull w/my hand for a while since my head will hurt terribly in base of skull for a while after. Is this from the EDS? Or the somewhat tortuous right artery that indents the medulla? I cant find anything online that is helpful on this or anyone to ask. My doc saw it noted by radiologist & said it had nothing to do with my symptoms & I dont know what to believe. I did find one site talking about this dx & all those patients compained of the symptoms I have. I really want help in understanding what symptoms I have are EDS related & not.  My fingers in right hand often go numb as well.  TX so much!!  Robin ~

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According to this link compression of the medulla is less well known ~ :( hoping to find out something.. TX!!

http://archneur.ama-assn.org/cgi/reprint/63/2/234.pdf
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