My 16 year old daughter has a recently diagnosed tectal plate glioma which cannot be biopsied. She had surgery 7 weeks ago for the Hydrocephalus and they did a Endioscopic Third Ventriscopoly. Everything was going well, recent MRI has shown no growth or enhancement of the tumour, fluid is draining and the ventricles have decreased in size.
The problem is headaches have only recently appeared in the last week, hospital says all the scans and tests are good and they can't explain why or offer any treatment that works, they are not responding to medication at all. Does anyone have any advice at all, I'm desperate