Been refered to a neurosurgeon, dont understand why?

[uk2]

Hi

I started to be ill in Jan 2007 with eye jerking sorness,pressure behind eyes,balance issues. I had MRI without contrast done on brain,spine they came back clear. In may 2007 i had a majour flare of full body spsams from top to bottom of my body. I have not worked since then as it has been a downward spiral since then, in Jan 2008 they dx fibro as and did not repeat MRI so i tried intensive physio,hydro lots of differnet meds, lyrica,requip,mirapixin,clonazpam, by june that year i was registered disabled and had to have cares come in and care for me. I still do and had to use a wheelchair because of weakness in my right side and a slight weakness in my left.

I have had 5 bouts of the the top to toe body spsams, 3 bouts of spasms round my ribs like a painfull hug. vertigo that my ENT thinks is central,hearing loss,jaw aching on right side and a frozen feeling up to my right eye,differecultie swallowing water the worst and my own salivia.

I get flares of weakness that is fatiuge in the muscles not fatiuge in myself and my eyes droop as the day goes on not my eyelids but my bit over the eye lid like extra sikn and my brow nearly covers my eye when bad but not all the time.

The ENT has excluded sinus problems and inner ear problems and feels the eye and the vertigo are central problems i also have a numb patch on my face i can pinch as hard as i want the r side again.

I wondered if they had missed something 2 yrs ago that they should of picked up or taken this long to present its self clear.

I have been refered to the neuroscience hospital in london st georges and have been refered by my sx to a neurosurgeon its an urgent appoinmtment though i am still waiting!!

why a neurosurgeon? will they be able to dx me? do they think something other then autoimmune disorder is going on confused

I just want this named and treated to slow it down,what will i be in 2 or 3 yrs if i am disabled now,i have 3 young kids and a singal mum and scared.

samantha

[uk2]

Thank you Nassim for taking the time to reply.

I have not looked into what you mentioned and will google it to get further info on this.

Can this grow without them first seeing it back in jan 2007? If a lesion (scar ) then maybe by not having contrast they missed this.

I have a bulging disk at C2 L4/5 and S1 being the worst of them all and causing a small narrowing and touching the nerve intermitantly, but i dont think any of that is to do with my SX and my neuro did not at the time.

With the neuroscience hospital in london st georges they try and match your sx up with the best department so i could not understand why a neurosurgeon as nothing has showed on my mRI as only had one lot in 2007 so maybe it is solely by SX the neuro felt it could be compression of nerves causing these SX to be honest i doubt half of the list of my SX went over and i wont be considered urgent as my GP requested.

Thank you once again i would love to stay in contact and use your knowledge to help me find answers.

I hope you get the placement you want and it would be great to see you one day.

samantha (smiling)

[Dr_Nassim]

Dear Samantha, your symptoms should be furtherly investigated with a next MRI, because as you suspect; it could show something new and more pertinent now, I mean after 2 years. Really all your symptoms fit with a cervical spinal cord lesion. The suspected lesion could be totally benign (for example AVM = arteriovenous malformation) of somehow malignant like MS = multiple sclerosis lesion.
I dont exclude a bilateral proces in the brain damaging both the right and the left hemisphere.
I also ask myself the same question Why A Neurosurgeon ? are they seeing anything which we can remove surgically and they won't tell ?

Hope the conversation with you was helpful somehow, I would like to keep in touch to know further info about your health, and also hope I can see you in Jan 2010 where I will practice in the national neurology and neurosurgery hosp at Queen square
waiting for the results
please untill then ; SMILE, smile please :-)