JOEY54

[JOEY54]

WOULD OSTEONECROSIS  OF THE JAW BE TREATED  BY ORTOPEDICS OR E.E.N.T. SPECIALISTS? WHAT IS RECOMMENDED TREATMENT?

[JOEY54]

We need to find another hematologist. I am starting to wear down

[JOEY54]

Thanks for your response.We went to the hematologist and he took discontinued the Warfarin  Can you imagine? He has severe jaw pain and the possibility of tetanus crossed my mind. we went to a nuerologist  and he ordered a bone scan  to rule out osteonecrosis. They finally have the radioactive  isotope.This is so frustrating  and the pain that my son has to endure  is beyond words . He has had this ongoing severe jaw pain  and is also having muscle spasms in his face  and he can feel them all through his body. in regards to TETANUS we need an infection control specialist. Is there any special tests for tetanus  or is it just clinical?

[Kamal S Saini, MD, MRCP (UK), DM]

Hi Joey,
You mentioned earlier that your son had MTHFR and APC.
MTHFR refers to the enzyme "Methylene-Tetra-Hydro-Folate-Reductase", while APCR refers to "Activated Protein C Resistance".
Basically these terms refer to a disorder of the blood caused by a gene mutation to which forms the MTHFR enzyme. This can lead to a condition called Thrombophilia, which means that the body will have an increased tendency to form blood clots.
Please show your son to a hematologist, who may put him on oral drugs, and monitor his blood coagulation parameters periodically.

[sonu78]

Hi,
From when is he suffering from hip pain. Was the x-ray of the Hip joint taken and if taken what was his report.

[JOEY54]

HE WAS NEVER DIAGNOSED YET,BUT THEY ARE SUSPICIOUS  OF THE OSTEONECROSIS BECAUSE OF HIS CLOTTING DISORDERS  (  METHFR  AND RESISTANT  ACTIVATED   PROTEIN C].  THIS IS WHY THEY WOULD LIKE TO DO A BONE SCAN WHICH WE CAN'T GET DONE DUE TO SHORTAGE OF THE ISOTOPE. NOW HE IS GETTING PAINS IN HIS HIPS

[sonu78]

Hi,
Sorry. Have no knowledge about Canada.
How was he diagnosed to have osteonecrosis. Was he on frequent radiation to the head and neck region.

[JOEY54]

HIS MANDIBLE WAS NEVER XRAYED. THE ORAL SURGEON DID  A PANOREX,WHICH SHOWED TOOTH ROOT  IN THE MAXILLARY SINUS AND A SINUS SCAN WAS DONE. WHEN I WENT TO TALK TO THE DENTIST  HERE HE SAID THERE  IS SOMETHING ON THE SCANS BUT HE DOES NOT KNOW WHAT IT IS AND REFERRED HIM TO ORAL MAXILLARY  SURGEON. I WONDER ABOUT OTHER PATHOLOGY GOING ON . BACK TO THE BONE SCAN,I EVEN CALLED MAINE MEDICAL  BECAUSE RIGHT NOW I WOULD EVEN PAY FOR IT,BUT NOBODY IS BOOKING BECAUSE OF THE RADIOACTIVE ISOTOPE  SHORTAGE. MY SON CAN NOT FUNCTION.HE CAN NOT WORK BECAUSE OF THE DEBILITATING   PAIN WHICH NEVER GOES AWAY.  IF YOU KNOW OF A PLACE THAT IS BOOKING THEM PEASE LET ME KNOW. WE ARE IN  N.B.CANADA.. I KNOW SOMETHING IS BEING MISSED

[sonu78]

Sorry about that's going on with your son.
With relation to what you have posted,
Since one of your sibling had tested positive for FAP and ulcerative colitis, the other son is placed under risk category though he has tested negative. Hence it would be advisable to have screening procedure done on annual basis or as per your surgeon's advice.
With respect to the current problem, about the bone scan to be taken, do have it done in some other center close to your residence at the earliest. What was the x-ray mandible results.

[JOEY54]

THANKS ,ONCE AGAIN.. IT IS SO FRUSTRATING. HE HAS A WEAK POSITIVE LUPUS AND HAS RECTAL BLEEDING  ALSO. MY OTHER SON HAD  FAMILIAL ADENOMA  POLYPOSIS/ ULCERATIVE COLITIS.   THIS IS A LONG STORY AND I AM TRYING TO SHORTEN  IT.MY SON THAT IS PRESENTLY  ILL, TESTED  NEG  FOR FAP AND I KNOW EVEN IF YOU ARE NEG FOR THE DISEASE THERE ARE VARIATIONS. WHEN  HE SAW THE ORAL SURGEON THERE   W AS  A TOOTH ROOT  IN THE MAXILLARY SINUS WHICH WAS REMOVED . HE DEVELOPED  ORAL ULCERS WHICH WERE BIOPSIED   WHICH THEY WERE SUSPICOUS  FOR VACULITIS,BUT IT SHOWED  INFLAMMATION

[sonu78]

Hi,
Positive ANA sounds that your son does have connective tissue disorder.
Sorry, not able to follow METHFR and APCR.???????
Looks bad that you have been pushed to one corner to another

[JOEY54]

Thanks for your help.the eent specialist  recommended  a bone scan  and now there is a  shortage of the radioactive isotope .This is for my son ,he also METHFR  and APCR  and a positive ANA. We went to a oral surgeon  and he referred him to a neurologist

[sonu78]

Hi,
Osteonecrosis of the jaw do usually occur in relation to some dental problems.It would be advisale to seek consultation with a dental surgeon and possible oro-maxillofacial surgeon.

[JOEY54]

THANK  YOU

[Suri123]

Hi, you can get more info about Osteonecrosis of jaw at this URL,   http://www.mediafact.com/osteonecrosis/