Hi Mel. I am surprised that with a reoccurance and stage 3 (even of borderline OC) they did not do a complete hysterectomy (TAH/BSO, total abdominal hysterectomy with bilateral salpingo-oopherectomy, or removal of both ovaries). I was dx with stage 1a and go to Roswell Cancer Center and when I was there did some reading as follows:
They recommend TAH/BSO and "aggressive cytoreductive surgery. Patients with stage 3 and 4 disease with no gross residual disease have had a 100% survival rate".
Non-invasive implants is very good.
Were you treated by a Gynecological Oncologist? This is very important.
Good luck and make sure you get regular follow-up.
Thanks hopeshell, no i did not have any TAH/BSO? i want a hystorectomy and everything taken once i have kids or if not before. The Ca 125 does not work for me so i am a little scared as i really only have my own instinct but i guess its proven so far to be better than doctors. thanks for your imput.
There are several on this board that have borderline tumors. Hopefully, one of them will post to you as I bump this up to the top. The prognosis is very good no matter what stage but they can recur. I have read follow up should be the same as other ovarian cancer...every three months at first and less frequent with time. Did you have TAH/BSO? I have read it is recommended to have all removed after pregnancy if you had a fertility sparing surgery. Recurrences tend to be later with borderline tumors. Good luck to you.