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CA125 results
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CA125 results

I feel a lot better.  I have been worried and while waiting on an MRI that won't be done for 2 weeks, I thought I would go insane.  But, I got my CA125 test results and I am only a 10.  I know that it doesn't guarantee anything but I still feel a whole lot better.  I think I can wait now for the next steps, MRI and whatever else, without going completely insane.
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14 Comments
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Avatar_f_tn
I hear you. Even though as many have pointed out it's no guarantee it still makes you feel a whooole lot better especially with all the waiting. Anyway,my personal opinion is that generally it must mean something otherwise why do it?
I actually didn't want to do it(because of all the false pos/neg and thought what if i get a bad result it's just going to make me crazy...anyway doc kind of pushed and I finally relented ..funny thing is it was a relief at 11.
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167664_tn?1203976220
Do you have ovarian cancer?  Or are you waiting on tests to find out for sure?  What is your story?
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Avatar_f_tn
Here goes..I was very uncomfortable with symptoms of bloating,gas,freq urination,and what felt like rectal pressure.
This was the beginning of June.Went to er because of rectal pressure.They did a rectal exam(YEs!)and test for blood rectally and all that.Also had pain in back around tailbone.
THey didn't know what was wrong but thought I might have pulled my back so gave me anti-inflammatory meds and sent me home.The Doc in er said it might be a gyno problem but they really didn't know.To make a long story short ended up at family doc the following week and sent for ultrasound's and found a 6.3cm cyst on right ovary.
At the moment I am awaiting surgery at the end of month to have it removed.Have had 3 ultrasoundds(both kinds) ca125,and a
ct scan and they don't think it's anything sinister although it
is a complex cyst (so it could be).Not full solid but anything that is not completly fluid filled is considered solid.
Anyway the waiting is brutal.Have you had this for a while also?
Mary
p.s also at 42 i am menopausal for 1 yr so the worry continues as it is more common to be 'sinister' in menopause
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167664_tn?1203976220
I went in to the Dr probably 2 months ago for a bladder infection.  Got anitbiotics, didn't help.  Urine culture didn't grow anything.  Went back, got different anitbiotics, didn't help, culture didn't grow anything.  Went for sonogram, (they surprised me with the yucky kind too), showed a solid mass with definate flow by or attached to right ovary. My dr. says, no need for MRI, they (gyno) will do a biopsy cause either way they will have to know what it is.  Gyno, says, your symptoms, (pressure, achy, crampy, bloating, feeling full, tingly and frequent urination, and dull aching) probably has nothing to do with tumor, and orders an MRI which is not scheduled for 2 long, dreadful weeks.  Then he says, it might be stool!  I'm thinking, wouldn't a trained ultrasound tech and a Dr. of Radiology know the difference between a mass with flow and stool?  So, that just made things worse.  MRI on the 15th to get better idea of what it is, then we'll see. I'm 38 and don't know my family medical history.  The waiting is brutal.
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Avatar_f_tn
Hmm..I think I was talking to you before because i remember you're antibiotic thing..I also had that after 1st er visit and before family doc appt went back to er  because anti-inflammatories were not working and also 'felt' it was the wrong answer.I also got antibiotics for UTI because the
quickie pee test showed something but in the end it also didn't grow anything. Also got antibiotics from family doc but by then i KNEW it wasn't an infection.The er doc tweaked me when he said it might be a gyno problem and from that moment on i knew it probably was. By the way how big is you're "Mass" and yes I do think they should know the diff between a "mass" of some signifigance and a piece of poop! I mean even i could tell them that(I Think!)
Mary
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167664_tn?1203976220
Hee, hee.  That is totally how I feel.  If they can't tell the difference, then we need new docs! The mass is only 3.3 cm.  They said like an inch in circumference. So, whatever it is, they have caught it early.  

I have never been in enough pain to go to the ER.  Mostly just uncomfortable.

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Avatar_n_tn
Hi montie!!!!!
      I just read your post! I had a cyst three times the size of my ovary on my falopian tube for 10 years. They found it when I was 16 and kept trying birth contol and pain management with it. Every time I went to the hospital they said it was nothing and gave me vicoden and sent me home. I recently went to the e.r and an obgyn speacialist came down and within the ten years all of my doctors failed to tell me that my cyst was moving from one hundred percent lizuid filled to eighty five percent covered in rough spots. I just had my surgery monday and it was pretty scary for a person who has never had surgery and never even broken a bone but the surgery part was the easiest part :) All I have to say is if you are taking pain medication beware of the constipation........I have figured out that constipation is surgerys worst enemy...Take care
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Avatar_f_tn
Well like you said it is pretty small,so hopefully all is well..
Keep us posted
Mary
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Avatar_f_tn
Hi angel,
just read your post and didn't get whether everything was ok in the end or not(apart from the constipation!). I am also facing
an op the end of the month and also have never had one before so i am pretty scared ..any thoughts
Mary
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Avatar_f_tn
I was just thinking...they said this 'mass' was beside or on the right ovary--I was just wondering how they think a piece
of poop ended up there? I mean seriously isn't your colon and rectum a ways from there!
Mary
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Avatar_n_tn
I was so worried before my surgery....I cried every night before it and was telling my boyfriend if something happened to me I loved him and I would miss him....I was calling my mom saying please dont make me do this and everyone was saying you have to. I honestly thought I would die having surgery. When I got there I was bawling and scared and the nurses and everyone were asking why the hell I was so upset.....I felt stupid asking them what would happen if I died. I had my operation done at Oregon Health and Science University so there were students there to watch over and see the procedure done and they kept telling me you are going to be ok. I panicked when the anesthesiologist was talking to me bc the night before I had looked up on the net what could happen when you were under, he was hot too but I have terrible anxiety, so I got up and ran to the bathroom and was throwing up and crying. They already had the iv in so when I got back the hot anesthesiologist told me he would give me something to calm my nerves. Next thing I knew I was tying to breathe and wake up and had a nurse by my side. That was the worst part was trying to wake up and get myself to recognize where I was and what had happened. Thirty minutes later I was out and eating pizza at home with my boyfriend :) You will be fine. The stress is so not worth it. When you get home your stomach is just sore like you got in a fight with someone or like you are having cramps from a period. In fact in my case the pain after surgery was tons less then the pain the cyst had been causing until this whole constipation thing :) Honestly I would suggest before your surgery to keep your bowel movements healthy and then to take an over the counter laxative or ask your doctor for one after your surgery so you do not strain to get it out after your surgery and you will be fine hon :) I am still waiting for my results....they called to schedule me physical therapy and then called me back saying due to the results they had to change the type of physical therapy and go to a different therapist so I have no idea what my results are which kind of blows and then I called to talk to my doc and she had moved departments so I have no clue what the hell is going on or if they found anything but I did get to see pictures of my insides and what they took out and the tube they tied which was pretty cool. Just take it day by day and try not to stress out. They have amazing medical technology these days that help so much. Any more questions feel free to ask. There are no stupid questions and trust me I asked them all. I will pray for you!
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Avatar_f_tn
OMG!!You made me laugh....We must honestly be the same.I am mental already and I don't even have surgery until th 28th!
I could just picture the scene in the hospital(M
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Avatar_f_tn
Sorry..hit the wrong button! As i was saying i could picture the scene in the hospital(only cause i've already imagined it myself) and I told my husband i don't know what i'm going to do that i'm going to have to take tranquilizers like for 2 weeks before! I was actually thinking the other day i hope the anestisiologist(sp?) isn't old and grumpy cause then i'll probably just be in the corner bawling.AS my wonderful hubby said to the Gyno "she needs alot of hand holding"....well at least he warned them.
On another note,how is it you don't know yet?Didn't they do a biopsy in the operation? What size was your cyst or "mass".
Thank you for the prayers...I will say some for you too and
especially for your 'regularity"!
Mary
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Avatar_n_tn
Well- they looked around during the surgery to make sure there is no endemetriosis and that kind of stuff and to see if the ovaries and everything looks healthy, that is why you sign so much before because if they are in there and see stuff that could be problematic then they take it out, and that was one of my biggest fears was having no say in them taking my parts out and then never having the oppurtunity to have children. But now they only took the cyst and part of the tube out and they send that to get biopsied and checked out to see if it could have been cancerous or benign and all that wonderful junk. Where are you having your surgery done?

I really would not worry about the surgery. You will have your husband there until you close your eyes and then as soon as you open them you can ask for him and its literally like two seconds before you see them. I honestly sat there and was wondering if I was on my way to the surgery and I had just come out of it. I had no stitches at all....just surgical tape.....so the scars if any are small. I have had periods that were way worse then the surgery was....I promise. If I ever have to go through it again there is no way I will remotely stress like I was. Just think....the anesthesiologist told me that he knew it was scary but they do this a hundred times a week but they have to do it for things as minor as we are going through up to brain surgery and stuff like that. That is a little about what kept me positive, my dad had a tumor removed from his brain and he came out fine, all we are having is a cyst removed.......you will be okay. But.....as you have read.....try your hardest not to have to go through the constipation part....it seriously sucks terribly. I hate that my boyfriend now calls to see if I have pooped yet instead of calling to say lets go out to dinner but I am sure it will pass soon. :)
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