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Complex Ovarian Cyst
I have been diagnosed with a 2cm complex cyst on my right ovary and a few small functional cysts on my left ovary. I'vd had these for over 4 months and my OBGYN keeps playing the wait and see game. But from what I've read, the complex cyst will probably not go away on its own. Is it time for me to see a oncology gynecologist?
linlynn...I so understand your hesitating to have the cyst, possibly ovary removed, when you are young, and still want children. What I am learning through my experience is a lot rides on how long you have had the cyst, and whether or not it is shrinking. Many docs opt to take out the entire ovary simply because of the risk of rupturing the cyst, and spilling it's contents into the abdominal cavity. Especially when unsure of the contents. (cancer, or not) Many women are able to get pregnant with one ovary. Keep uo with the ultrasounds, and please keep us posted. Oh..one thing I just remembered, the recovery from an operative laparoscopy can be as short as one week. I like the sound of that! *smile*
TGinKY...I think a little humor thrown in every now and than keeps us all sane. *smile* Again I am soooo releived everything looks all clear for you. AND glad you are going to check in.
AHH yes my little update...had my second opinion appointment yestuday....and going in for my follow up u/s this morning...which means in about 10 minutes I'll be drinking the lovely 32 os of water that will become my best friend for about the next hour and a half. lol At the docs yesterday I felt like I was ordering off a menu...I'd like a hysteroscopy please with a side of d and c, just to rule out cancer in my uterus. Also if it wouldn't be too much trouble could we do an operative laparoscopoy, and remove my rt. ovary, and tube if the u/s comes back that my little friend is growing? Please just put in the right codes so my insurance company pays for it all. I really did ask for all that...so I'm now scheduled for surgery on December 27. Just be assertive ladies...boarderling aggressive with your treatment plans. *smile* I'll be thinking about all of you.
TGinKY...I think a little humor thrown in every now and than keeps us all sane. *smile* Again I am soooo releived everything looks all clear for you. AND glad you are going to check in.
AHH yes my little update...had my second opinion appointment yestuday....and going in for my follow up u/s this morning...which means in about 10 minutes I'll be drinking the lovely 32 os of water that will become my best friend for about the next hour and a half. lol At the docs yesterday I felt like I was ordering off a menu...I'd like a hysteroscopy please with a side of d and c, just to rule out cancer in my uterus. Also if it wouldn't be too much trouble could we do an operative laparoscopoy, and remove my rt. ovary, and tube if the u/s comes back that my little friend is growing? Please just put in the right codes so my insurance company pays for it all. I really did ask for all that...so I'm now scheduled for surgery on December 27. Just be assertive ladies...boarderling aggressive with your treatment plans. *smile* I'll be thinking about all of you.
I appreciate all the exclamation points! And I love that term "Cysters"!!! Too funny!!!! I'm feeling better every day & feel like a wieght has been removed from my shoulders, and I have gotten a little attached to all these wonderful ladies and plan to keep checking in. Best of luck to you. EAK1962 - How are things going with you?
I was always told that I would need the ovary removing. The doctor never said he would be able to take the cyst by itself. I'm sure that your doctor would try very hard to see if he could save your ovary as you still want to have children. I guess if you leave it you run the risk of the cyst rupturing again and ,maybe needing emergency surgery and also the risk of it being cancer. After my operation the doctor told me that the cyst was wrapped around the ovary and that he wouldn't have been able to save it. I don't know was sort of benign tumour it was. It's a hard decision to have to make for you, especially as you feel fine. It must be a very hard time for you. Do take care.
Thanks for answering my question and sharing your experience with me. At the beginning, I went to a second opnion. It does not help me not much or I can say not at all. He just read the US report and thougt it was a hemarrhage cyst and need to wait for some time. So I stayed with my first gyn doc.
As what I learned from this forum, lot of ladies had planned to have cyst removed but it turned out to be whole ovary removed. Loulou695, did your doc. told you which benign tumor is your cyst?
I will let you posted.
As what I learned from this forum, lot of ladies had planned to have cyst removed but it turned out to be whole ovary removed. Loulou695, did your doc. told you which benign tumor is your cyst?
I will let you posted.
Your experience sounds exactly like what happened to me (almost). After a fall down the steps I had severe abdominal pain which was finally identified as a hemarrhaging 5cm cyst. As the pain settled down I was told I had to wait for 3 months before another ultrasound. I too, had almost forgotten about the cyst only to find that mine had grown to 8.5cm in three months., but had no symptoms. I had a 6 week wait before I could see the specialist and during this time I still didn't think that it was going to need surgery, I just thought they would monitor it further. As soon as I got into the specialist's room he said to me he needed to remove it within 4-6 weeks, there was a 10% chance it could be cancer and he wouldn't know unless he took it out. He told me it was too big to remove it laparoscopically and I needed a laparatomy with 3-4 weeks off work. I must say it blew me away. He also prepared me for maybe needing both ovaries removed, or even a full hysterectomy. As I had already had my family that part of it wasn't something I had to worry about - but I can understand you not wanting surgery. I have had my surgery (nearly 4 weeks ago now) and only lost one ovary. The cyst was benign - which is what most cysts are, but I do believe you can't afford to take the risk. What about seeking a second opinion about the whole thing? From what I have read you can still get pregnant with one ovary. The surgery is quite invasive aalthough most people seem to get over it quite quickly, unfortunately I've had a post-op bleed which has made my recovery slower than expected. Do let us know how you get on.
Three months ago,I had a suddent severe low abnominal pain that brought me to the ER and found I had an 6.7cm complex cyst in my right ovarian. The ultrasound report shows it could be a hemarrhage cyst and let me wait 2-3 menstrual cycles . While my doc. thought it is a endometrioma and suggested a laparoscpy. I have been waiting for three months. The size does not change.
But my overall healthy situation improved a lot. I felt very horrible at the begining. I have pain, fever and GI symptoms. Without any prescription except I took Iboprophin at home, I recoved fast. I am getting better and better. I started to go to gym and do kinds of excercise. I almost forgot the cyst.
I am thinking to have a laparoscopy on Jan. But what my doc. told me really freak me out. He said he may took my right ovary out. And he let me also consider if it is cancer, what do I want to do althogh it is low rate.
I am in good condition now. I am 33 year old and want to have children. I can not accept that I may lose one of my ovary or in some circumstances lose all my female organs. I am struggling whether I need wait or have surgery? Any suggestion will be welcomed.
But my overall healthy situation improved a lot. I felt very horrible at the begining. I have pain, fever and GI symptoms. Without any prescription except I took Iboprophin at home, I recoved fast. I am getting better and better. I started to go to gym and do kinds of excercise. I almost forgot the cyst.
I am thinking to have a laparoscopy on Jan. But what my doc. told me really freak me out. He said he may took my right ovary out. And he let me also consider if it is cancer, what do I want to do althogh it is low rate.
I am in good condition now. I am 33 year old and want to have children. I can not accept that I may lose one of my ovary or in some circumstances lose all my female organs. I am struggling whether I need wait or have surgery? Any suggestion will be welcomed.
I was just reading through this thread and I read your post about having to stick with your gyn as there was no gyn/onc within 80 miles. Tell your gyn Dr to refer you to one. I was dx in 2005 and the closest gyn/onc eas a 3 hour drive from me, in Spingfield IL. I think if I were you I would feel better having talked to a gyn/onc. If no insurance is a problem try contacting the Department of Human Resources, at least that is what it is called in IL. In other words, public aid. But I would definately get another opinion as they just seemed to blow off the other 2 cysts and I would want to know what was going on. Good luck to all of you! Chris
This is FANTASTIC news!!!!! Woooo-hooooo!!!!
I'm in agreement with hopeshell. Positive news is GOOOOOD!! *smile* Maybe you could stick around and root us cysters along. lol
I'm in agreement with hopeshell. Positive news is GOOOOOD!! *smile* Maybe you could stick around and root us cysters along. lol
Ovarian cancer never gets smaller so I think you are in good shape! It is great to hear positive outcomes. Best wishes.
Another thought. I may have to give my husband some credit here. He's been feeding me vitamins, herbal remedies, and supplements by the handful! May have worked! or at least helped?
I called back because I really needed clarity. Apparently 2 of the cysts are completely gone and the other is shrinking. Let's just pray that's right because that would be GREAT news! (no insurance!!) I'll just have to sit tight & be alert for any increase in symptoms, I reckon. Maybe this is just an answer to prayer! I'll get my prayer warriors on your case (and everyone else's)! Good luck with your second opinion!
This is one game I wouldn't mind being out of either! I have never heard of complex cysts resolving on their own....but then again that's just what I've heard. *shrug* Another opinion might be a good idea simply for your own peace of mind. An additional u/s in a couple of weeks wouldn't hurt either. I just feel like we can NEVER be too careful with ovarian cysts. It's kinda interesting that they only referred to one cyst as being smaller...hmmm...please check further into that report, and keep us updated. *hugs*
Speaking of second opinions...I get in on Thursday this week for mine.
Speaking of second opinions...I get in on Thursday this week for mine.
Looks like I might be out of this game, but maybe not?!?! My results are confusing! Initially they told me I had a complex cyst that needed follow up (after my first US). But when I got my report it said that I had 3 cysts - 1 simple & 2 complex. They called today with the results of my follow up US and said that "the cyst is smaller & seems to be resolving, no further follow up needed." I asked the nurse about the other 2 cysts, and she said, "That's all it says here." End of conversation. Does this mean I'm not supposed to worry about those other 2 cysts or what?! My symptoms have improved, but are not gone by any means. I guess my next step is to get a copy of the report (which will take another 2 weeks) and see if I start feeling even better. Any other thoughts anybody?
I was diagnosed with 2 cysts on the left ovary on Oct 12th this year after an ultrasound. and she waited it out until I went back a month later on Nov 6 and after I did another ultrasound, she scheduled me for a laparoscopy on Dec 6th which was just Thursday. She removed my left ovary and I had a D & C and I had the lining in my uterus burned so my periods would not be heavy and most likely I may not have any more periods. Yeahh. But I am doing very well. and do not plan to go back to work until Monday Dec 17. Only problem Im having is constipation which I have not gone since the day before surgery. So at the moment we are typing, he has run to town to get some prune juice and some pills salled senna or something like that. But apparently constipation is a side effect from anetheisa and pain killers. I quit the pain pills yesterday morning and still not going..lol. So hopefully prune juice and senna will work for me. But actually the day after surgery, I felt good and walking around. I came home the same day of the surgery. My cysts were dermoid cysts and over 6.5cm each. I was having some pretty darn miserable pains with it and I do feel better already. Laparoscopy is not really that painful afterwards like you think you would be. You can feel it, but you can get around and walk around and it's doable. Im really pleased with the after post-op. Just wish I could do a bowel movement at this point though..lol. Eak, let us know what you find out. If you end up having a dermoid cyst, my gync says these are what you are born with. Some grow and some don't. Of course mine grew. The dermoid cysts are 99 percent benign, and even though she sent the cysts to pathology, she is pretty confident they are benign. I will get the results in a few days. She said the other ovary was very healthy. and everything looked good. So keep in touch. :)
I understand your desire to move things along. These things are really painful, aren't they? Quite distracting to say the least. I'm getting to the point where I can hardly sleep on either side. Ouch! I have wondered if it wouldn't almost be best to just have the ovaries removed, since this may just happen again..and again.
Through this I've learned something - the wheel of medicine grinds slowly! (grIn) I wish you the best of luck on getting things done quickly!
Through this I've learned something - the wheel of medicine grinds slowly! (grIn) I wish you the best of luck on getting things done quickly!
Jump right on in! *smile* Sounds like you have a bunch of those pesky little cysts. From what I understand we are right in the age group, with the whole peri menopausal thing and all, to grow an abundance of unwanted little things on our ovaries. *sigh* I sure do hope that hubby of yours can help move things fast for you! Keep us posted as to your progress with deciding treatment and all. My Internal Med doc ordered the u/s that found the cyst....I haven't even been to a Gyn yet. Which brings me to what I accomplished today...had all my labs, u/s etc. sent over to a Gyn for a second opinion....searched out a doc that's not afraid to cut. I really, really want to have the cyst removed ASAP. We shall see what happens next......
Can I play, too? I am at about the same point as both of you (the same age,too). I have 3 cysts on my left ovary, 2 of them 2+cm complex cysts and a simple cyst. Have had symptoms for quite a while and am waiting on results of second US. I HOPE that the DR doesn't say "Let's wait & see"! Waiting is tough, isn't it?!
Next time I see the DR I'm taking my assertive husband (that'll scare 'em!). I too don't see the point in waiting for a complex cyst that most likely is not going away on its own and is causing problems/symptoms. Especially considering that the ONLY way to know for sure whether it's OVCA is to biopsy! One thing I've learned from this forum (among many) is to be assertive and don't let them put you off.
I appreciate you advice, Northen Lights, about the CA125. I had already had that thought that I did not want a potentially false negative, and from what I've read, the results, unless they are EXTREMELY high, are going to be pretty much useless anyway at this point (being pre-menopausal.) By the way, I try to keep my tail down. It's noticeable enough as it is!
I am in a tough spot, since there is NO GYN/ONC within 80 miles of here, so will probably have to just stick with a regular OB/GYN if it comes to that point. Let's all just hope those things magically decide to go away on their own and never come back! Good luck to everybody!
Next time I see the DR I'm taking my assertive husband (that'll scare 'em!). I too don't see the point in waiting for a complex cyst that most likely is not going away on its own and is causing problems/symptoms. Especially considering that the ONLY way to know for sure whether it's OVCA is to biopsy! One thing I've learned from this forum (among many) is to be assertive and don't let them put you off.
I appreciate you advice, Northen Lights, about the CA125. I had already had that thought that I did not want a potentially false negative, and from what I've read, the results, unless they are EXTREMELY high, are going to be pretty much useless anyway at this point (being pre-menopausal.) By the way, I try to keep my tail down. It's noticeable enough as it is!
I am in a tough spot, since there is NO GYN/ONC within 80 miles of here, so will probably have to just stick with a regular OB/GYN if it comes to that point. Let's all just hope those things magically decide to go away on their own and never come back! Good luck to everybody!
Can I play, too? I am at about the same point as both of you (the same age,too). I have 3 cysts on my left ovary, 2 of them 2+cm complex cysts and a simple cyst. Have had symptoms for quite a while and am waiting on results of second US. I HOPE that the DR doesn't say "Let's wait & see"! Waiting is tough, isn't it?!
Next time I see the DR I'm taking my assertive husband (that'll scare 'em!). I too don't see the point in waiting for a complex cyst that most likely is not going away on its own and is causing problems/symptoms. Especially considering that the ONLY way to know for sure whether it's OVCA is to biopsy! One thing I've learned from this forum (among many) is to be assertive and don't let them put you off.
I appreciate you advice, Northen Lights, about the CA125. I had already had that thought that I did not want a potentially false negative, and from what I've read, the results, unless they are EXTREMELY high, are going to be pretty much useless anyway at this point (being pre-menopausal.) By the way, I try to keep my tail down. It's noticeable enough as it is!
I am in a tough spot, since there is NO GYN/ONC within 80 miles of here, so will probably have to just stick with a regular OB/GYN if it comes to that point. Let's all just hope those things magically decide to go away on their own and never come back! Good luck to everybody!
Next time I see the DR I'm taking my assertive husband (that'll scare 'em!). I too don't see the point in waiting for a complex cyst that most likely is not going away on its own and is causing problems/symptoms. Especially considering that the ONLY way to know for sure whether it's OVCA is to biopsy! One thing I've learned from this forum (among many) is to be assertive and don't let them put you off.
I appreciate you advice, Northen Lights, about the CA125. I had already had that thought that I did not want a potentially false negative, and from what I've read, the results, unless they are EXTREMELY high, are going to be pretty much useless anyway at this point (being pre-menopausal.) By the way, I try to keep my tail down. It's noticeable enough as it is!
I am in a tough spot, since there is NO GYN/ONC within 80 miles of here, so will probably have to just stick with a regular OB/GYN if it comes to that point. Let's all just hope those things magically decide to go away on their own and never come back! Good luck to everybody!
Sounds like we"re both pretty much at the same point in treatment. Let's keep posting our progress as this whole thing unfolds, O.K.? Chin up...or is it chin down...tail up...Oh I can never get that one straight.
I can't thank you both enough!!!!! Although I really like my OBGYN, I'm not happy with the way she has delayed doing anything - it has been over 6 months now since the cysts were found via US.
I did have the CA 125 test - which came back negative. But I know that the results of that test are not an indication of how bad my cyst can be. I have an appt in 4 days with an GYN/ONC. I'd rather be safe than sorry. Thanks again for your support and input!!!!
I did have the CA 125 test - which came back negative. But I know that the results of that test are not an indication of how bad my cyst can be. I have an appt in 4 days with an GYN/ONC. I'd rather be safe than sorry. Thanks again for your support and input!!!!
I agree with Danimatt.
I too was diagnosed with a complex cyst just about the same size as yours, and on the rt. ovary. My doc is only giving it 4 weeks...after that out it goes. I'm taking a very aggressive approach with my little unwanted growth...pushing for a laparoscopy to have it removed before the 4 weeks is up. One bit of advice...so you don't make the same mistake I made...I had a CA-125 drawn as a diagnostic tool...not something I would ever recommend to anyone. I truly believe the best diagnostic tool is to have the cyst removed and, a biopsy done. Keep us updated on what you decide to do. *smile*
I too was diagnosed with a complex cyst just about the same size as yours, and on the rt. ovary. My doc is only giving it 4 weeks...after that out it goes. I'm taking a very aggressive approach with my little unwanted growth...pushing for a laparoscopy to have it removed before the 4 weeks is up. One bit of advice...so you don't make the same mistake I made...I had a CA-125 drawn as a diagnostic tool...not something I would ever recommend to anyone. I truly believe the best diagnostic tool is to have the cyst removed and, a biopsy done. Keep us updated on what you decide to do. *smile*
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