Just checking in

[dustinsmom2004]

Just wanted to thank all of you for thinking of me. I have been extremely busy, chemo again postponed due to mrsa pneumonia. I have to take three months of clindamyacin. I think this is getting ridiculous. If it is not one thing it is two. I just lost my respite care for Dustin, and am now in charge of everything related to autism. I get so tired that I dont kow if I am coming or going, and dont get much time on the computer anymore. I probably need to go back to the cruddy hospital where we live, but I know that it is left lower lobe pneumonia, just dont understand why one day it is all good and the next right back to square one. The ip chemo was discontinued indefinately due to horrendous side effects that I did not expect, so here I am waiting for another good day. I got chemo about two weeks ago, but we are so off schedule that it is ridiculous. I am frustrated and want to get this done. pcp wants another ultrasound and mammo, and cat of chest even though the pneumonia panel came back as mrsa ( this was the second panel run). I think that I am just over doing it. I work two days a week, and work with Dustin 24/7 since no pre school will accept him due to his consistent biting. On May 9th I am taking him to the school by us to see if he qualifies for a special needs preschool, but until then it is just me. For the chemo I get stuck each and every darn time cuz dustin loves to play with the pic line, so that is out of the question, already tried that, amd it was too fascinating to him. I am sorry I am just venting instead of anything else. I probably should have put this on the autism forum, but since I know most every one here, and we all have more in common I felt more comfortable just venting here. I am sorry for not keeping in touch the past few weeks. first week pneumonia, second approved for chemo, third no chemo, forth no chem. I dont even want to know what the ca125 is since my numbers are always running pretty high, anyway I am sorry. I hope that all is well with everyone and dont forget that I think and pray for each and every one of you. Take care

[dian07]

As far as I am concerned you can come here and "vent" anytime you please.  I wonder if your local American Cancer Society could help you out somehow?  There are so many volunteer associations out there....surely somebody could offer some help.  Good luck and I hope things turn around for you really quickly!
Peace.
dian

[msjazz]

I am sorry you are having these problems. Where do you live? My sister has an autistic son, and when he was small, other child centers helped him as our town had nothing for just autistic children.Call centers for "other special needs children and see if they can give you any information. Or call the elementary schools and see if they know of places that can help. Gook luck, Donna

[PF_PVD]

I'm so sorry, too, to hear what a rough time you are having.  It is frustrating and scary enough to have chemo postponed without all you are going through at the same time.  I hope you can find some relief soon.  Paula

[YvonneS]

Please don't feel bad about venting.  I have been doing the same thing and feel guilty about it. but that is why we are here.  You have a bunch on your plate and Ipray you will get some support from this school.  I pray for you and your tretment.  I hope someting really encouraging will happen today!  God bless you.  Yvonne

[lvfrogs]

I noticed that you hadn't posted in a while and I am so sorry to hear about your troubles.  I can't imagine beginning to deal with everything that you are going through. I do hope that you are feeling better soon and that you also have found some help/preschool for Dustin.  I will keep you and your family in my prayers.  I would think that the women on this forum would say "vent anytime", that is what we are all here for!
Hugs,
Colleen

[gma718]

I was wondering how you were and am so sorry for all your troubles...I am hoping you are feeling better from the pneumonia...I am also sorry also regarding your situation with your son...maybe get in touch with the state and maybe they can arrange for some help for you..I am thinking that maybe you have already went that avenue..I wish you the best of luck and hopefully all will be in place soon...so that you can rest and get the treatment that you need...Stay Strong....Gia :)