MORE questions!

[PatiC]

Again, thank you all for your responses! This site is the best!  

I have a few more questions...

The pain! I am relieved that there are so many that have had the exact same pain that I am feeling. The pain has been increasingly worse on both sides. My left side is the one with the 8.3cm mass and that pain is the one that shoots into my groin - I am limping now! The right side, with the 2.9cm cyst is a sharp, localized pain.  With pain increasing (so much so that I took a leave from work, no way I can be on my feet 12 hours), is that a sign/symptom of malignancy?

I have been having right upper quadrant feeling of pressure.  I have to lean to my left, if I don't, it feels as if my organs are being pushed up into my ribs.  (MRI showed no masses or abnormalities in abdomen. Large mass is on my left, not right side.) Has/does anyone have this symptom? Can anyone explain?

I am going back and forth with this one... please hear me out.  Yesterday when deciding on getting gyn/onc instead of gyn to do surgery, I called the gyn/onc office for appt. His first appointment is July 16th.  So that means I wait TWO MORE WEEKS for appointment, then maybe more tests to be scheduled (not sure since I had 2 US, MRI and the CA 125 already), but then more waiting till surgery date. I know nothing happens overnight so I would probably be looking at least 3 more weeks. That is way too long.  Again, with MRI of both pelvis and abdomen being negative of everything with exception of mass and cyst, CA 125 negative ..... my opinion/guess would be IF the mass or cyst is malignant, it would be localized to the ovaries, so stage I. So here is the question: why not let the gyn do surgery with the gyn/onc on call?

This morning I am calling 2 other gyn/onc's that aren't affiliated with my hospital to see if they could see me today. If I can't get in, I am considering going ahead with laparoscopic surgery scheduled for tomorrow. I know that I sound crazy, going back and forth about this, but I am soooooooo anxious and want things taken care of NOW.

I am sorry for posting so much, but your answers and stories are so helpful.  Again, I am not crazy, just crazy anxious and impatient.

Hugs to all.

[ChrisP2236]

I had laproscopic surgery with my gyn to remove the ovary and would recommend waiting for a gyn/onc if there is any question of cancer - had I gotten a second opinion and had a gyn/onc peform the initial surgery I probably would have been staged 1A instead of 1C. The gyn morcellated the ovary to remove it and thus it was considered ruptured. I also would have avoided the second surgery as the path would have been done at the time of surgery and the hysterectomy, pelvic washes, biopsies would all have been taken care of then and there.  Two surgeries within a month is not the way to go if you have an option. JMO  ChrisP

[Lafnatitall]

Has your gyn suggested a laparoscpoy for a biopsy?  That's what I did.  I had my answer the next day, and then scheduled for an appointment with the gyn/onc in 4 days after that.  I know I got in sooner to the gyn/onc because of the biopsy and a call from my gyn.  If the scans are all showing negative, it would be worth the minor outpatient surgery to know for sure.

Best to you...hope you don't have to join our club!  (and I say that with sincere kindness!)

Laf

[abrite]

PatiC,
You may want to post your question on the Ask An Expert forum. Dr. Goodman is very helpful. Best wishes.

[ChrisP2236]

The pain can be caused by the size of the masses - you cannot tell from the pain whether it is malignant or not - biopsy is the only way to know for sure.

I agree that 3+ weeks seems a long time to wait but you really only get one chance to do this right.  If it is malignant you want to give yourself the best possible care and that is the gyn/onc.  Is it possible to call the first gyn/onc back (if the other two have equally long waits) and just explain your concerns and the pain you are in and see if they can fit you in?  The gyn/onc I called (now retired) kept an early appointment open almost every day (unless surgery went over) for newly diagnosed patients or those sounding like they had urgent sypmtoms.  He actually saw me two days after I called his office.  

I understand your impatience and how this is causing such anxiety. Only you can decide if you want to take the risk of your gyn operating with the gyn/onc on call - maybe some other ladies who had that situation will post and let you know how it worked for them and say if they would do it that way again.  Let us know how it goes for you, whatever you decide.  Chris P