Pseudo Myxoma Peritonei

[Baker22]

I went to surgery to remove a large ovarian and a mesenteric cyst and when I came out I was told I had a rare type of tumor called Pseudo Myxoma Peritonei. surgeons removed my uterus, ovaries, appedix , omentum and lots of abdominal fluid. My gyno (who was told at the time the tumor was benign) put me on HRT. my oncologist (GI tract specialist) later told me it was borderline tumor. I will need chemo in 4 months and Im now worried that HRT might not be a good idea. does anyone know anything about this disease?

[orangefuzzball]

Hi Tybear - I come to the sites daily but don't post often unless it's about PMP.

I was diagnosed with PMP in October 2006 after having been previously suspected OVCA 3-4. My first and most important question is is your surgeon a specialist in PMP and intraperitoneal heated chemo (given during surgery)? - seeing a specialist surgeon is more important with this disease than cysts seeing a gynae-onc (and that's vital enough!)

I don't know how much you've read - it looks pretty scary when you first have a look, but it's do-able - I'm back at work on Monday after my last op in October.

Have you looked at the Belly Button Club site? I don't tend to go there an awful lot as it can be a bit scary at times - although that hasn't been my experience with the disease, it's not pleasant but no type of cancer is!!! There is also the Christie's Hospital site (the hospital I'm treated at) that has a pleasant and more easy going forum, and there is the best information I've seen on the disease on the information part of the site. PMP Awareness site also has a list of most of the specialists worldwide, plus lots of info.

Let me know what you want to know and I'll answer what I can (most PMP'ers know a lot as no one else ever does, you'll find that out if you haven't already!)

Lisa.

[Tybear]

There was another woman on here who had this - Orangefuzzball was her computer name. I hope she comes on here and sees this as she knows quite a bit about this disease. Her real name is Lisa...if anyone knows how to get a hold of her, please do!
Thanks,
Becky

[msjazz]

I had ip chemo last year . They place a port in chest and abdomen. I had taxol day 1 in port, cisplatin day 2 in abdomen and taxol day 8 in abdomen.The  cisplatin made me reaaly nauseated, and I started having home health give me nausea meds and fluid drips at home the day after.That helped. I have seen posts on here where it did not bother other people as much, everyone is different with chemo tolerences. good luck, speedy recovery!    donna

[Casey06]

Hi Amani, since I did not have PMP, only a borderline ovarian tumor, I did not require any chemo or further treatment. A few on this site have had IP chemo and can probably answer your questions as to the procedure, but I am not that familiar.  You may want to make a seperate post regading IP chemo as well, to specific responses about this.

Best regards

[Baker22]

Thank you for your kindness. I did google it up but specialists dont even agree on their definition of the term. Did you have to undergo interperitonial chemo? I'm told this is what I must do in 4 months and it is a major procedure (again!) I wanted to talk to people who have had it and understand what side effects I should expect and recovery period etc. If you've been through it I'd appreciate your input

Thank you again
Amani

[Casey06]

I had a mucinous borderline tumor removed in August 06 and any mucinous tumor is suspicious for PMP. It actually arrises from the GI tract, not ovaries and that is why they remove the appendix. Since it is not ovarian cancer, the HRT should not affect it , but I am not 100% sure.

Google it up, but be careful, because there is some scary information regarding this disease.

Good luck and you are in my prayers. Sorry about the dx.