UK cysters shadowscout and anna-maria

[Nat2]

Hi Ladies,

How are you two doing?  Anna-maria I know you had your surgery and stress around waiting time for biospy results. Shadowscout know you had your surgery and partial omentum removed but couldn't follow all the posts to understand your full outcome.

How are you two doing?

I'm okay the chemo is a bit rough - more emotional feelings than physical which I suppose is good, but I don't feel I'm handling things all that well at the moment - I've posted a long post about all my thoughts and worries under my "chemo - good side effects?" post so won't retype them all here again - getting them out once was scary enough!

Please post and let me know.

[Nat2]

Hi Ladies,

Well it sounds like mostly positive news from your side.  Anna I'm so glad yours is all okay, and Ursula hopefully you won't be advised on any agressive follow-up treatment.

I think I'm going to phone my MacMillan nurse and ask if I can go in and talk to her about my worries regarding coming off chemo - I know it's not rational and therefore not healthy so I need to get my head sorted out!

PS:  Anna, I'm live in London

[Anna-maria74]

Oh darling ive just read your post, you are in a bit of a shitty zone right now aren't you. This whole damn journey is a never ending process of anxiety. I remember reading somewhere that as much as you loath having the chemo it makes you feel safe as it is actively destroying the cancer. Therefore it is quite normal to feel torn between wanting it to end and yet fearing it. Despite this turmoil your still asking how we are what a gorgeous person you are.

Well as far as I can gauge from dragging the info out of a doctors receptionist my cyst was benign although all she read out of the report was 'the abdominal washing came back with no sign of malignancy'. She didnt mention the specific biopsy on the cyst, ovary, falopian tube, or the partial other ovary. She also said that the histology had been filed away which would not have been the case if it were malignant. My next appointment is the follow up at the end of August so I am assuming that if there was anything worrying they would surely bring me in before then. So all in I guess the worse thing it could have been was boarderline that hadn't broken through.

Where abouts in the UK to you live?

Anna x

[scoutshadow]

Hi
It's an undeniable anxious time for you.  I remember the close follow ups all those years ago and they used to be so stressful.  All I wanted was to be able to get on with my life and start my family.  And yet when they decided to move it to a yearly scan I was petrified.  Letting go of your treatment is difficult to do.  You feel the safety net/comfort blanket is being taken away and as a result you feel vulnerable.  Logically of course this makes no sense but it is a very real feeling nonetheless and hard to get rid of.

I'm on anti-biotics as I wasn't happy with the way things were going with my scar - I'd already rejected three stitches and things were getting too red and inflammed for my liking.  I'm a little down today and very tired - I suppose that's only to be expected but the medicene is working.  I've also got an iodene dressing on.

I'm awaiting confirmation by letter from the gyn/onc regarding my follow-up treatment.  She believes that chemo and radiation is unnecessary but will have a scan in 3-4 months.  My uterus and ovary were not removed.  The granulosa tumour was growing from an old drain site and was stuck to the bladder.  The bladder biopsy was clear as was the omentum.  They believe it was a seedling from the old tumour removed 16 years ago.  My catheter came out last Tuesday (brilliant feeling).

I better post as we've been having computer glips all day.

Take care - and try not to overdo the housework - I'm not looking forward to that once I recover!
xxursulaxx