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Update on my mom, and question
Hello. I have posted a few times about my mom, but I visit here often. My mom was dx with stage 3c ovca in May of 2006. She completed 6 rounds of IP chemo (cisplatin and taxol). Then last September, she began 12 treatments of maintenance chemo (taxol), and finished her last one today! The doctor was very happy about that, and said that she is the 3rd, to be able to finish this, in the time he has been working at the hospital! Her ca-125 was staying at 4 pretty much through out her maintenance chemo. She has been having a pain on her side, where she had her surgery and where the port was. The port was removed last October. She said the pain has been there but feels like it is getting worse. She can feel it when she is moving around or just sitting. She said it feels sore inside, but if u touch it from the outside, she can't feel it too much. She went to the doctor today before her last chemo, and her ca-125 is at 6 now. I know it is only 2 up from before, but we are concerned because it was staying at 4 and now she has the pain. The doctor said it could possibly be scar tissue, but they won't know for sure until she has her scan. Does ANYONE on here have painful scar tissue?? I am very worried that we will get bad news after the scan. Thanks.
I actually never had a hyster or was dx with OVCA, alot of us on this board haven't been. We hang around and answer questions, and try to help women in their hour of need. Alot of women don't know they can get these painful adhesions from surgery. I've had 2 laporscopy procedures, one leep procedure, and 2 c-section. My last lap was for adhesions. And a wonderful friend Mary53 let us all know about this excercise to help, and I've been passing it on whenever I can get the chance, because there is nothing doctors can do for adhesions other than surgery, but it's the surgery that causes it, so it's kinda like a double edge sword. I hope it works for your mom, my prayers are with your mom and family. Paula
Yes the body rolling does help, daughter does it about 2 times per week now, around 10 minutes per session. she was dx in June of 2006 at stage 3, I bought her ball at WalMart in the sports section. This just happens to be one more of the things they don't tell you to do after surgery.
Thanks so much for replying!! Also, thanks for writing the very detailed instructions on your exercise to help with scar tissue. I really appreciate it!! I will print it out, and give this to my mom to read, so that she can try.
When did you have a hysterectomy, and what stage were you dx at? How are you feeling now?
Thanks again, and hope all is well with you. Take care!
When did you have a hysterectomy, and what stage were you dx at? How are you feeling now?
Thanks again, and hope all is well with you. Take care!
Yes, scar tissue also know as adhesions are very painful, but I'm going to tell you an excercise that your mom can do to lessen this pain. Its called body rolling. I hope this info helps your mom out.
As we get older its as if some of our insides "glue together" and that this releases much of the gluing because of all the blood, thus oxygen, it brings to the area. It seems to break up the adhesions and it worked for me. She intended to teach elderly people because the "gluing" is so bad as we age if we don't treat it. I figured that if it worked for adhesions that formed naturally in our body, it should work for surgical adhesions.
It is truly amazing. I noticed a HUGE difference immediately. When I sat up after the fist time I did this (about a 15 min. session) I could feel a "FLOOD" or a Rush of blood or something! going to that area. After having pain about 40 times an HOUR for over a year and a half after my surgery, my pain decreased to only about 10 times a DAY for a few seconds at a time. I did this procedure again about a week after the first one and that gave me even more relief. I think it was about four months til I had to do it again. Now I do it about once a year, if that. I have been virtually pain free, ,aside from a dull ache now and then, from adhesions since learning this technique.
The idea is you want to get the blood to the bone, not just the muscle....so it floods the tendons and gets lots of oxygen there to start healing and breaking up the adhesions.
**My instructor told me to think of a steak and how the tendon is sort of splotchy with blood where it is attached to the bone...well, you want to get the blood totally to the bone so as to really break things up. Regular massage is not "deep" enough.
The ball I used measures 16 inches. Again, though, I did not get the ball thru the website (Body rolling is a dot com, one word, and you can learn about the woman who developed the technique. Anyway, I got just an ordinary ball in a toy section at Target and it looked similar to the one the instructor had used. The ball I have has a picture of Blues Clues on it! Hey, it works. It probably is bigger than the ones they recommend, but, if you think about it, it is squishy to the point where once all my weight is on it, it probably shrinks down to about ten inches. And, I just put my "front" onto the ball for the pelvic pain and not my back.
-------------------------------------
Here is how I did it...leaning my body wt. into it, literally placing the ball underneath me and "rolling" on it...slowly.
I would lay on the pubic bone and then take about four minutes or so to SLOWLY (while remembering to take deep breaths now and then) work my way out to the right side where the ovary once was on that side. After you get there, go back slowly to the pubic bone...breathe deeply. When you get to the pubic bone again, then go to the other side, following a path, if you will, of where you imagine the falopian tube once was. So, you are rolling in something like a "V" formation. After you get to the left side where the ovary once was, then go back to the pubic bone...and, you are done. But, take about 15 minutes to do the whole procedure.
As we get older its as if some of our insides "glue together" and that this releases much of the gluing because of all the blood, thus oxygen, it brings to the area. It seems to break up the adhesions and it worked for me. She intended to teach elderly people because the "gluing" is so bad as we age if we don't treat it. I figured that if it worked for adhesions that formed naturally in our body, it should work for surgical adhesions.
It is truly amazing. I noticed a HUGE difference immediately. When I sat up after the fist time I did this (about a 15 min. session) I could feel a "FLOOD" or a Rush of blood or something! going to that area. After having pain about 40 times an HOUR for over a year and a half after my surgery, my pain decreased to only about 10 times a DAY for a few seconds at a time. I did this procedure again about a week after the first one and that gave me even more relief. I think it was about four months til I had to do it again. Now I do it about once a year, if that. I have been virtually pain free, ,aside from a dull ache now and then, from adhesions since learning this technique.
The idea is you want to get the blood to the bone, not just the muscle....so it floods the tendons and gets lots of oxygen there to start healing and breaking up the adhesions.
**My instructor told me to think of a steak and how the tendon is sort of splotchy with blood where it is attached to the bone...well, you want to get the blood totally to the bone so as to really break things up. Regular massage is not "deep" enough.
The ball I used measures 16 inches. Again, though, I did not get the ball thru the website (Body rolling is a dot com, one word, and you can learn about the woman who developed the technique. Anyway, I got just an ordinary ball in a toy section at Target and it looked similar to the one the instructor had used. The ball I have has a picture of Blues Clues on it! Hey, it works. It probably is bigger than the ones they recommend, but, if you think about it, it is squishy to the point where once all my weight is on it, it probably shrinks down to about ten inches. And, I just put my "front" onto the ball for the pelvic pain and not my back.
-------------------------------------
Here is how I did it...leaning my body wt. into it, literally placing the ball underneath me and "rolling" on it...slowly.
I would lay on the pubic bone and then take about four minutes or so to SLOWLY (while remembering to take deep breaths now and then) work my way out to the right side where the ovary once was on that side. After you get there, go back slowly to the pubic bone...breathe deeply. When you get to the pubic bone again, then go to the other side, following a path, if you will, of where you imagine the falopian tube once was. So, you are rolling in something like a "V" formation. After you get to the left side where the ovary once was, then go back to the pubic bone...and, you are done. But, take about 15 minutes to do the whole procedure.
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