borderline cancer

[bluenose]

hi I have been reading posting on this site for months now because nearly 3 months ago I had a ultrasound that came back as possiblity of maligmence, 6 weeks after that i was in the O.R. having my ovaries removed the biopcy came back a 7 cn. borderline cancer.  from what i have read on this site there are things that are done in these cases, to insure that all the cell have been taken.  Perhaps things are different here in Canada from what is done in the USA. But I have not seen a doctor and my operation was July 14/06 I was told today that I will not be seen by oncoligy doctors and that is where I stand. I am so afraid that something will be missed and a year from now someone is going to say "sorry" I just want to know what is happening to me and what my risks are. I have checked out the web sites that have been suggested on other postings, like john hopkins and others and they all speek of further testing and treatments and other operations. I don't want to be a drain on our health care system but I do want to know that I am going to be ok. I have three little boys to look out for and they need a mom.  why is this taking so long and why am i getting no answers I have book an appointment with my GP for this Fri. and I am hoping he can help. Is everything ok is that why they are not seeing me? I still would have like to hear it from them (oncolyg) Thank God for this site and all of you God bless

[Tybear]

Hi there. I'm from Canada too, (Barrie, Ontario) and I understand your frustration. I don't know why they wouldn't have sent you to see an oncologist. I would personally request a copy of your pathology slides and have them sent to Dr. Kurman at John Hopkins for a second opinion. It will cost about $200, but borderline tumors are a tricky grey area - better safe than not. I was originally diagnosed with borderline tumors, but during surgery it was discovered that it had spread and it was, indeed, cancer. I was a 26yr old single mom to a 3yr old little boy - I understand why you need answers. If the tumor was confined to an ovary, many Dr's opt for no further treatment, but will still follow you to make sure things don't progress - they don't really even consider it cancer. If it had spread beyond the ovary, further treatment if usually reccomended. There are two types of borderline tumors - LMP (low malignant potential) and MPSC (micropapillary serous carcinoma). I got diagnosed with MPSC, and I'm nearing my 1yr anniversary. I did have chemo, but again, I was late stage (3c). This is a tough area, as many Dr's don't really even recognize borderline tumors as their own category. Get a copy of your pathology report and make your Dr answer your questions - don't let them rush you along, as is too often the case here. Good luck!
Becky

[mahen59]

Hi, my wife was diagnosed with OVCA in late stage (3c) four years ago.  A total hysterectomy was done and she went thru' a 6-cycles chemo.  Unfortunately she had recurrence about 17 months later.  She had a couple of more surgeries since then and is currently on chemo for 3rd recurrence.  What I am saying is whether it is borderline or not it is better that you see a specialist, preferably a gynae-oncologist, and have your case examined thoroughly. Further tests and treatments may not be necessary but it is better to be safe. You should'nt be too alarmed. Trust your doctors. Have faith in your prayers.