Hi Alex,
Thanks for asking. She's not doing too well. I just sent you a message.
sljl
That is great news. I called my sister and she will ask her doctors.
Thanks again,
sljl
My skin was bad but it healed completely and I have had more Doxil. They did reduce the dosage of Doxil.
Alex
That is fantastic! I've email my sister your information. Thank you so much.
Right now, her Drs have stopped the Doxil last week after 5 rounds and are having biopsies on her skin to see if it is the medicine or if it is cancer. Her Dr. has never seen anyone with her condition and is researching on what to do for her.
I'm so glad I found you and have forwarded your info to her. She can ask her doctor for it.
sljl
Methylprednisone Dose Pack. The dose Pack is important. My whole back and stomach looked like bubble wrap and then the blisters popped. It was a mess but that was Xmas and it has not happened since. I have had 8 rounds of Doxil and am heading for 9. I plan to ride a horse before number 9.
Alex
Wow, thanks for your info. What is the name of the steroid?
sljl
Yes you do need a prescription. They make all the difference. I am going on a beach retreat this week end and I had Doxil a week ago and no blisters. I have had them so bad they have had to stop treatment.
Alex
Hi Alex,
Thanks, I'll pass this info to her. Did you need a prescription for the steriod?
sljl
Thank you, Alex, for your reply. Are you taking Doxil with a steoid to stop rash?
Yes, she is on Doxil for chemo. Some of the rash has broken through and as she moves, it cracks and she starts to bleed. Dr. thinks it is blood clots under her skin and no oxygen or nutrients are getting to her skin so the skin is dying and developing into rashes. He is considering blood thinner to reduce the blood clotting under her skin but what about bleeding out if there's no skin?
sljl
She is not on Doxil for chemo is she? That can cause rash. I am on steroids for rash.
Alex
Alex