stage 3 grade 3 immature teratoma in ovary

[bmcd]

My 15 yr. old daughter was diagnosed with a stage 3 grade 3 immature teratoma of the rt. ovary (the tumor was 21 lbs.), which was sugically removed. She also had a benign mature teratoma removed from her left ovary. The cancer had spread to the abdomin (abdomen) lining, which was also removed, but not to the lymph nodes. She is having chemo(BEP). This will be 3 1/2 hrs. per day for 3 straight days. There will be 4 series of this with 2 wks. rest in between each treatment. What is the future prognosis for this?  What should I expect during treatment and in the future. Any other imformation would be greatly appreciated.

Thanks,
bmcd

[GlendaS]

Hi! Immature teratoma is so rare that I actually haven't met anyone else that has had it. I am 27 years old and had immature teratoma stage 3, grades 1 or 2 (depends on which pathology report-I had the slides evaluated several times) in my right ovary a year ago in Oct. I had several different gyn/onc opinions and some recommended chemo and others said that
I could just be monitored-it's kind of a gray area. I decided not to do chemo, so I can't really give you any info. on that other than that they prescribed the same treatment, but each doctor gave me a different regimen. If you haven't already, I would strongly suggest you get at least a second opinion. The pathology means everything to the prognosis and immature teratoma is so rare that many hospitals have never even seen it before. I was told by one doc that this is the type of thing that the pathologist goes to the shelf and pulls out a textbook to try to figure out what kind of cancer it is. Even if the pathology comes back the same, another doctor may have a different regimen that may be more or less favorable to you. Standard protocol for immature teratoma is a unilateral salpingo oopherectomy (one ovary and tube removed) so my guess is that your daughter still has her left ovary. I have had several problems with cysts on my left ovary since a month after my surgery. Even on bc pills, I have developed cysts. They can be scary because the only way to tell for sure if they are cancer is to have surgery and have them biopsied and removed. Even though a recurrance on the remaining ovary is rare, it is still possible. I have a cyst on my ovary right now that I am waiting to hear back from one of my docs on, but I will probably be having surgery to remove it. Hopefully, your daughter won't have problems with cysts. Having chemo may help her in that regard. I am so sorry that your daughter is having to go through this! The good news is actually that immature teratoma is very respondent to chemo so from what I know she should have a great prognosis. Please feel free to post questions for me if you have any. I would be happy to help you and her in any way. Good luck to you and my prayers are with you!-Glenda

[Anna-maria74]

Good god 15 years old. I am so so sorry that has absolutely broken my heart - you are one brave lady I hope you stay with us to keep us up to date.

Immature teratoma (malignant dermoid)is rare but the most common malignant ovarian tumour in girls your daughters age. Good news is that even at an advanced stage - as in your daughters case - it is mostly cured. Chemo and surgery is the right course of action for a stage 2 and 3 and the prognosis is excellent.

You and your daughter are in my thoughts

Anna x

[bmcd]

Thank you very much for your input and prayers.  All information and any new information is greatly appreciated.  My daughter goes for her second chemo treatment Jan. 23. Oh, by the way, I'm a semi-brave dad not a brave lady lol.  Thanks again, and I will kept all those interested and concerned updated.

[bmcd]

Thank you very much for your input and prayers. All information and any new information is greatly appreciated. My daughter goes for her second chemo treatment Jan. 23. Oh, by the way, I'm a semi-brave dad not a brave lady lol. Thanks again, and I will kept all those interested and concerned updated.

[ALybella]

My hairdressers grandaugter was diagnosed with an imature teratome last june of 05.  Her tumor was 8lbs.  They went with the chemo route for 6 monthd, very aggressive treatment since hers had also spread.  Well guess what, I ask for her everyday, she's back in school, graduating from highschool and living a normal life.

Also believe it or not, I know someone else who was diagnosed at age 12.  She is now 30, 2 kids and healthy.

May God bless, you and your family.  My prayers are with you.