I am mom to a 6 year old girl who is a puzzle.
She has a history of GERD but normal pH probe last Oct. She also has asthma, chronic sinus and ear infections. She has had PE tubes, tonsillectomy, adenoid revision, 2 sinus lavages and 2 bronchoscopy/lavages. She has allergy symptoms but has tested negative 3 times with scratch testing. She had an immune work-up and a CF test which were normal. In 2005, she had a year-long bout with pseudomonas in her ears and sinuses, so the 2nd sinus lavage and irrigation. She had a normal barium swallow with follow through in May, 2007 and a normal EGD in November, 2007. Abdominal x-rays at one time showed moderate stool retention but the last one was normal. Recent first morning urine specimen ruled out diabetes insipidus.
Despite all of the above, she has ongoing symptoms which have not been explained including chronic abdominal pain, chronic daily nausea without vomiting, when she does vomit it lasts for days and requires Zofran to stop, heat intolerance, chronic headaches, easily fatigues, frequent leg pain, she does not appear to sweat but has a wet hairline in the heat, ocassional low grade fevers, and constantly drinking/craving water. She is hungry all of the time, but fills up quickly most of the time. No developmental or growth delay.
She has frequent "episodes" where she simply does not feel well (non-specific general malaise), becomes droopy and lethargic and lays down wherever she is. I asked her ped to please talk to someone about her. He spoke to an endo who asked if she craves salt (she does not) and thereafter suggested TSH and free T-4 blood work, which we are doing next week. He also suggested that I have her run outside and get overheated before the blood draw so they can see her levels while she is overheated since this is when she seems to have the most trouble. Any ideas?