Aa
19 weeks pregnant and found a brain tumor...what to do??? Options???
I am 19 weeks pregnant and I had a level 2 ultra sound and was told my baby girl has a large brain tumor. The tumor is 20% of her brain and is pushing the ceribellum down. My Down Syndrome test results came back abnormal .5% 1 out of 175 chance. Therefore they did a amniocyntisis, should have results monday. Then I did an MRI to take a better look at the babies brain/tumor.
The doctor told me chances are slim she will live after birth and told me I have the option for terminiation until 24weeks.
Now we just wait. I don't see much information on the internet regarding this. I don't think many have experienced this. We just are waiting for the results now.
I'm praying for a miracle in hopes down syndrome is negative and the tumor is something less serious. Is there any other possibilites other then a tumor???
The doctor told me chances are slim she will live after birth and told me I have the option for terminiation until 24weeks.
Now we just wait. I don't see much information on the internet regarding this. I don't think many have experienced this. We just are waiting for the results now.
I'm praying for a miracle in hopes down syndrome is negative and the tumor is something less serious. Is there any other possibilites other then a tumor???
U are so brave I cant imagine going throw what your going throw tbh I would probz stress to much it would cause extra stress for the baby, I cant give u any help but my thoughts are with you I hope everything works out for you and its not as bad as the doctor makes it
My friend Julie was told early in her pregnancy via ultrasound and amnio among other tests that her baby boy had serious fluid in the brain and wouldn't live after birth. The tried to get her to terminate but she refused. This continued most of her pregnancy, at the end, the ultrasound d tech told her he was missing part if his skull. He was born perfectly normal and is now 3.5 years old! God is in control and the docs are wrong....a lot but not always. I was told I could never have children, this is my second full term pregnancy. Give it to God, I'll be praying :)
Hoping everything is going well! Haven't seen a post from you for a long while...
God bless u and ur baby girl u very brave and wonderful woman i hope only the best outcome xxxxxx
Thank you so much! Sorry took so long to respond.. some of the possiblities of this vascular tumor are below
hemangioma, hemogioblastoma, hemangio pericytoma, hypervascular sarcoma?? A typical teratoid/teratoid tumor
I'm just about 8months now. 2 more months till her arrival praying for a healthy baby!!! Trusting in god!!
hemangioma, hemogioblastoma, hemangio pericytoma, hypervascular sarcoma?? A typical teratoid/teratoid tumor
I'm just about 8months now. 2 more months till her arrival praying for a healthy baby!!! Trusting in god!!
Hey sweetie, i wanted to ask if there is a medical term or name for this? I will be taking the info you gave me to my church this morning..
My thoughts and prayers are with you and your family. Be strong for your baby girl. I will be thinking of you.
Be strong hope ur bay girl.makes it alright u never now wat can happen hopefully it goes away she strong good luck
It is heartbreaking...the story brought tears up...I hope for a miracle for u! Cherrish every moment , be strong and I will be praying for u guys!!
I don't even know what to say I am really sorry for what your going true.. I will keep you in my prayers!! God bless your baby and your family!
i dont know what to even say :( my heart goes out to you and i hope things work out for the better!
i dont know what to even say :( my heart goes out to you and i hope things work out for the better!
You're in my prayers, baby as well. Brings tears to my eyes, I'm glad you're not giving up hope. Gud luck keep posted with progress.
Oh momma stay strong. I couldnt imagine what you are going thru but like you said cherish every kick and jab and punch as they are so special. God intended this to happen for a reason and while we may not know why time will tell and only He can bring you thru this trial. Prayers for you and your husband thru this time as it cannot be easy. And for the rest of your family because it will impact everyone around you. But we know the Lord can work miracles so dont give up on your little girl. She is proving already to be a strong fighter.
Thinking of you all at this difficult time. Try to stay strong I think you're amazingly brave. X
We visited The Fetal Treatment Center at UCSF Children's Hospital which is the world leader in diagnosing and treating birth defects while the fetus is still in the womb and is internationally recognized for advanced therapies, including fetal surgery. It is the only institution in the world where some of these innovative fetal surgeries are performed.
They confirmed that the baby has a large vascular tumor. It is 20% of her brain. It's smashing her cerebellum because of the tight space. They also noticed that her brain stem is thinning. The brain steam controls the breathing and the cerebellum not only controls balance but speech as well.
It is very serious and chances of her living are so very rare. They have offered us the option to terminate. They have seen these vascular tumors before but at a very very smaller size and those children didn't live. There is also chances it is cancerous.
However today my husband and I decided to let nature take it's course. We are strong and so is she. We are not going to terminate the baby. We will continue to pray and keep our faith. On Thursday I will be 6 months 3 weeks. Every kick every movement I will Cherish...
They confirmed that the baby has a large vascular tumor. It is 20% of her brain. It's smashing her cerebellum because of the tight space. They also noticed that her brain stem is thinning. The brain steam controls the breathing and the cerebellum not only controls balance but speech as well.
It is very serious and chances of her living are so very rare. They have offered us the option to terminate. They have seen these vascular tumors before but at a very very smaller size and those children didn't live. There is also chances it is cancerous.
However today my husband and I decided to let nature take it's course. We are strong and so is she. We are not going to terminate the baby. We will continue to pray and keep our faith. On Thursday I will be 6 months 3 weeks. Every kick every movement I will Cherish...
I would still feel relieved by the MRI and Downs test, because ultrasounds are not always reliable. Actually, there have been quite a few times when they have been way wrong. I think the best thing to do is not terminate the baby, and try to get another ultrasound to see if that 1st one was faulty. Best of luck!
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