cystic hygroma

[safia]

hi this is about my sister in law she has been diagnosed with a cystic hygroma and has an amnio that has returned negative so it is not chromosonal, she has another appointment 04 13 i just wondered if anyone else has experienced this?    any reply will be gratefully received  thanks safia

[molly294]

Hya all went for my scan today and baby still alive i was so happy,also some of the fluid has gone which gave me hope, baby still in danger cause it still as alot of fluid around top of its body but knowing some of it had gone gave me hope, going for a heart scan next week to see if babys heart ok so will keep you all up to date thankyou all for your support hope everyone else is ok xxx

[RayNYC]

Molly that is good news. I am glad to hear that. We have a follow up next week with our OB. I am a little nervous but feel better now that I know that the cvs came back normal. But still I am airing on the side of caution. Just don't want to jinx anything.

[newborn]

Thats good dear......i just wanted to know did you get the chromosomes tested?..I mean CVS or amnio.

[newborn]

Everything will be fine....trust me. Please make sure your wife is eating well and not thinking too much as this could adversely effect baby. You know after my CVS was normal, my OB said "dont you worry now and go out for a movie....just relax". Those few days of tension were soooo taxing...I just could not think any thing else but about my baby 24*7....and tension is not good for baby at all.
Take care and wish you a great 2008!!

[molly294]

Hya hun never had any amnio test done got to decide if i want it done xx

[mommabird]

It's amazing how many of us are going through this horrible process of learning about cystic hygromas.  It's a term we'd never heard before Nov. 26th - that's the day I had my nuchal (at 12 weeks).  The technician left the room and in came a somber-faced doctor who told us that our bbaies nuchal measurement was between 6-7mm.  From that point on, we were given nothing but horrible statistics.  Had a CVS the next day and the genetic counselor told us it was most likely one of the trisomies, or a grave heart defect.  We had quick results for the FISH test -- all normal -- but had to wait another 2 agonizing weeks for the results of the other chromosomes.  Those, too, turned out normal.  We were so relieved by those results, but still our specialists told us it was most likely a heart defect -- because of the large amount of fluid (almost 7mm).  Fast forward to yesterday:  we had a 16 week specialized sonogram. We got a miracle: the fluid was completely gone and the heart looks "encouraging."  I share this story because we were in the depths of despair.  I know how you all feel and even though our results turned out well, I will never forget the pain and loneliness one feels when you're given this diagnosis for your baby.  My faith in God is what got us through this. I am religious - but really prayed more than I ever have in my entire life.  If you are religious - pray -- even if you aren't, how much can it hurt to take a chance....it can only help.  I'll pray for everyone on this site -- and wish you and your families all the best....