Hi,
I have a 9 year old daughter who was finally diagnosed at the age of 6 with obstructive sleep apnea (she has had it since day one, but had very little symptoms besides not sleeping so I had a heck of a time trying to convince Dr's that she had a problem).
She is very slender, tall, smart, and healthy, but does not sleep. She has been on cpap, pressure of 7 for 3 years without much success. She has had her tonsils and adnoids out. The specialist we see is apparently one of the top Dr's in Canada, but is stumped at why she is not responding well to the cpap. On a good night, she will get an average of 4 hours sleep, but we don't have very many good nights, so its usually less than 3. She will often be up out of bed on average of 5 -10 times a night. Although some nights she is in bed for 12 hours, but wakes up looking like she only slept for 2. She has had 7 sleep studies in the 3 years, and during the last one, they tried a variety of pressures, and there were signs of apnea on all of them. So the Dr. told me to just go on a pressure of 7 even thought there were still episodes of apnea, it was the least amount. I am so frusterated and don't really know where to turn. My daughter is now waking up physically exhausted, and has constant bags under her eyes. Could this be something else??? I asked my Dr. and she said that my daughter is the 1 % that they just have no clue why she is experiencing apnea and such poor sleep. She eats very healthy, gets ample excersise and is on a consistant routine at night. Any help, suggestions or anything would be much appreciated, I am desperate for any feedback!!!
Thank you,
zzzzzz