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Anyone know of anything to help with chronic vasomotor rhinitis?

by spaz224, Oct 11, 2008 06:32AM
I have had it for as long as I can remember, when I was young it caused me severe ear problems and I got vents in my ears twice. This helped the ear problems for a while but as soon as the vents came out they were back. The doctors didnt realize that it was my nose that was causing it until recently even though I always complained about my nose. It ruins my life, I live in the UK and its always raining here and there is very low humidity which of course makes it worse, I can't go for walks or anything to active and I never could although it seems to have gotten progressively worse as the years have went on. I am now 17 and still suffering I have had just about enough, I never let on how muh it actually gets to me but I really cant take it anymore. I haven't really known what it's like to have a normal nose and I've tried so many things. The doctor keeps giving me nasonex spray which doesnt really help all that much and ive tried the whole saline nose washing thing. It only helps for about an hour. I need help does anyone know about Bilateral transnasal vidian neurectomy surgery? My doctor said that its only a last resort as it can leave you brain damaged. Has anyone ever tried it and its worked for them? please help me


This discussion is related to Vasomotor rhinitis? .
Member Comments (2)

by laaz, Oct 16, 2008 04:23PM
To: spazz224
I know exactly how you feel as I have Vasomotor rhinitis as well. I have been to so many ENT doctors and there is not really nothing that they can do.  I have had all the scopes in the nose, down the throat, CT scan, MRI, blood work and everything shows up fine. I know what you mean about the nasal sprays, I think I have tried every single one that was ever made and that did not help either.  I spoke with one of my ENT doctors from Mayo clinic about having a vidian neuroectomy and he said "oh no, you don't want that, it could make you have dry eyes, dry mucus in your sinuses or even none and he also said something on the order of it coming back or growing back - something like that. and also the brain issue.  You would think with all the medical technology now days that they would have something to help us.  But as they say, this is not a life threatening disease, it is not going to kill you. Well it sure makes for a rotten life doesn't it!!  I wish I could have helped you with your answers.  You are so young and have your whole life ahead of you.  My vasomotor rhinitis started 6 yrs. ago when I was 45 yrs. old and after the flu.        Take care, maybe in your lifetime they will find a cure, I don't think in my years that I have left that they will though.   Sure makes for an unhappy life and I am sorry for you.            Laaz

by Trixy33, Jun 02, 2009 02:26PM
To: spaz224
That surgery sounds too risky for me.  I''m 36 and have been dealing with nonallergic vasomotor rhinitis for around 8 years. I've had surgery, do sinus rinses daily, and am taking around 7 medications per day to try to control it.  While I am definitely not cured, it has gotten better.  The winter months seem to be the worst.  I use both Astelin and Nasonex spray coupled with mucinex, sudaphed, singulair, garlic, and zyrtec-D.  When it is really bad, I take the Zyrtec-D and sudaphed at the same time.I remember Allegra-D pretty much curing my problems, but it made my neck and back hurt so bad that I had to quit.  Sinusbuster also helps some.  Have you discovered your triggers yet?  I think mine are being too hot, cold air, dust, and strong odors and possibly car emissions.  Don't give up.  I'm hopeful that someday I will feel normal again.
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