Can Sarcoidosis cause this?

[pinkangel]

I was wondering if anyone here with Sarcoidosis can tell me if they have experienced any of these as I'd like to know if it's sarcoidosis related:

My hands the palms of my hands are constantly red, they never go to the colour to which they are supposed to be, ever since I was diagnosed with sarcoidosis back in 1998.  They are always hot and uncomfortable and now I notice that my eyes are dry, as though someone is blowing air into them, it's getting harder to see words up close without a shooting pain in the head from reading yet I have 20/20 vision.  

Just making the bed, my arms tire out so quickly I have to stop, even in the shower washing my hair my arms are so tired that I have to drop them by my sides and wait for a bit before I can continue.  

I am supposedly in remission yet my breathing is to the point if I just walk to my own bathroom, or engage in conversation I'm so out of breath I need to stop and it's effecting my ear on the left side where I can hear my heart beating.

My doctor says I have a retractable ear drum but again it's as though my breathing is in relation to that as being out of breath causes me to hear my heart beating in that ear and its making life fairly unbearable.  

I'm getting chest pain like the Stitch and it's on the upper right side so isn't heart related again associated with being out of breath and I'm on the waiting list to see my lung specialist but received the covering letter saying I'd be seen within the next six months.  

I feel I cant wait that long, with this constant difficulty into breathing that I feel as though I'm dying, as it's just so hard to catch a breath it is like I've been robbed of air.  Yet I'm not coughing any more than I have been since I was diagnosed.  

So here I find myself asking all the above, can any one shed some light on these for me please?

[chrissy1129]

Just posted comment and put it to nanny instead of you sorry. It was meant for you.

[chrissy1129]

HI I am also a Sarcoid patient. I was diagnosed a year ago with it being in my lungs,liver,spleen,diaphram,and both sides of my neck in the nymphnodes. I also have been diagnosed in the last two weeks that it is in my spine and now could be in my brain. I have arthritis, carpel tunnel and tons of kidney stones all due to the diease. I do get short out of breathe from time to time and suffer from the fatigue alot. If there are any questions that you have about your mom that maybe I could help you with I would love to help. Just the best advice is to be there for her. I know that she might not be opening up alot but this diease can really be hard to put into words the way it makes you feel. No case is the same and each person is effected differently. Just hang in there and I am sure that when sheis ready she will open up.
Chrissy1129

[nanny 4]

Read your comments and would love to answer any questions.
Its about 930pm here on Monday. Will not get back on line until
tommorrow afternoon.

[nettie27]

I was reading your comment about scardosis. I am trying to get information about sarcoidosis. My mom was diagnosed in 05. She is having chest pain, shortness of breath and not able to walk a long time or at all some times, very hard to get out of bed, etc. She has know told me she is having problems with her liver.

I am just trying to find more info on this. She is not being open with me and  I am trying to research.

She has been diagnoised with diabeties, arthrithis, bad cholesterol.

[nanny 4]

This is Nanny 4 have you read my comment I sent you on June 13. Just wondering.

[nanny 4]

I hope this information gets to pinkangel.

I am a 40 year old female that was diagnoised with sarcoidosis in 1997.
My first symtoms where feeling like I had an elephant on my chest or
I was having a heart attach. I could not breath or at least felt that way.

I went to the emergency room an had an xray and was admitted into the hospital that day. I had a biopsy of the lung the next day to confirm.
I was put on high doses of prednisone and plaqinel.

I to always complained of pain in my chest at this point and difficulty breathing but the doctors dismissed it. Doctors say I am in remission

Since then I have had numerous doctors and problems. I have been diagnoised with connective tissue disorder which causes me to have like you said red hands. My reddness is on alot of my body mainly when I am stressed. My dermatologist has me on claritin and doxipin daily which has helped alot.

I also was diagnoised with pulmonary hypertension, raynods, fibromialgia, sleep apnea.

I still to this day have chest pain, very weak body, cannot walk but very short distance example to the other room in my small apartment, shortness of breath, pain in mostly every part of my body.

I am on disability now because I have not been able to work. I am very lucky that I have the support of my family. I am taking for pain tramadol, cymbalta, doxipin, claritin.

The latest problem is the doctors have found that I am anemic. So I am taking Iron which is helping I think.  

I could go on for days. I hope this has helped you some and or other people.        

[pinkangel]

Has no one got any relation to my above post I'm really desperate for some answers if any one can help I'd be greatly appreciative, thanks in advance :)