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Do I have sarcoid or not?
by weenie120, May 15, 2009 10:50AM
A recent chest xray revealed that I might have sarcoidosis. A cat scan with dye suggested the same. After a grueling lung biopsy to confirm, I have just learned that the biopsy was negative for everything. Any ideas.
This discussion is related to Puzzled about husbands lung problem.
This discussion is related to Puzzled about husbands lung problem.
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If they can biopsy something else like skin lesions, lymph nodes, it is another alternative. Not knowing what the CT showed or what your symptoms are I can't be of much help beyond that.
In diagnosing Sarcoidosis they test the serum ACE level, but this is still just an indicator that they put together with the whole clinical package not a slam dunk in itself.
Sarcoidosis is a diagnosis of exclusion and can only really be diagnosed through biopsy of suspicious tissue, which is usually lung tissue, or hilar, mediastinal, or auxiliary lymph nodes.