I am a 34 yr old CF patient. I have cultured steno twice in the past 5 months. The first time I experienced hemoptysis (mild), low grade fever and cough. I was given a 3 week course of Bactrim and felt better. The second time I cultured it I had extreme fatigue for a couple weeks before the culture and had been coughing up dark yellow/green sputum. Also my May PFT's, although still good, went down about 10% since my Feb ones. I was again given a course of Bactrim.
All that I have been able to find on steno (and it's not much) says that although it is considered a more uncommon antibiotic resistant pathogen in CF, it doesn't really say much about it's virulence as a pathogen. Obviously both times the bug has invaded my lungs it has made me sick, but I do not know if steno is actually causing any significant harm to my lungs.
Do you know anything about steno or if it can damage the lungs?? I plan to ask my CF doc at my next clinic appt but that is not until mid Aug.
Thanks in advance,
jleigh5570