Living with Mycoplasma Genitalium??

[Hendergab]

I'm a straight 34 year old guy, after ending a relationship with cheating GF,  got diagnosed with Mycoplasma Genitalium all this being around 2 1/2 - 3 yrs ago.., went to the Dr., after a series of consecutive STD tests that all showed negative results.. Based on my recurring symptoms (clear discharge, burning, testicle inflammation and swelling) the 4th Urologist that I saw finally recommended me to take the test which revealed the mystery behind it all...

As you probably all know, MG is a fastidious pathogen that lacks a cell wall, making it impossible to diagnose and to treat, most urologists treat it as a NGU, they recommend introductory AB's (like 1 week of doxy and cipro) that are meaningless to cure from Mycoplasma G. infection. My problem is that all of this happened while being called exaggerated on my symptoms by Drs., meanwhile time was passing by, and the infection progressed further down my prostate, even I recall one Dr. telling me it was psychological!!.

When I got the results, I ended having as treatment a course of Azithromycin 1gm dose, then 500mg for 7 days, waited couple of weeks to see results, but symptoms persisted, in fact they came back more severe and to my luck, new symptoms appeared: back pain, swollen joints, cold sores on tongue and skin redness (which I never had before), This was a immune reaction and according to the Infectious Disease specialist teamed with my Urologist back then, they assured me that with a course of 14 days of Moxifloxacin and Flomax (prostate pill) I was going to be ok//, nothing got better, at that time I was a nerve wreck, lost my job, with a bunch of other good things in my life..  

Basically, what I'm trying to find out is if there's really a cure for strong strains of MG, that are shown to be resistant to even Moxifloxacin, if so, what is the protocol>??, or is it recommended to take a new / longer course of Moxi (been several months since my last intake) I'm I find hard to believe that urologists don't answer simple questions like this nowadays---  

Its really frustrating to me that this disease is now labeled "treatable" not "curable" according to the recent 2 urologist specialists I have seen, This cannot be??, I've been robbed of my privileges of enjoying unprotected sex with my partner and eventually kids, because of this??

I want to know if there are other people on the same boat as I am?
To please come forward and share your experiences-
and also want to know, If you have found any alternatives to the treatment that worked?

[MG_Lingers2]

I've been struggling with MG for about 5 months now.  Tried most of the anti-biotics - and the latest was a 14-day treatment of Avelox about 6 weeks ago.

Discharge seems to have gone, but the sensation is still uncomfortable.  Just worried what other symptopm will be coming back and how to alleviate these symptoms.

Does anyone know (or read about) the worst case prognosis?

[Indian_guy2]

What is the mg of rifampicin that your doctor prescribed ?

I was prescribed and taken all the meds, Azithromycin, Doxy, and moxcifloxacin but I still have symptoms. Another doctor has again prescribed me moxifloxacin 400 x 10 d. I'm yet to start the course.

[BBGAN]

I understand, but I've been battling MG for awhile and am looking for any sort of relief I can get.  My doctor has just prescribed for me the course detailed by brisbane_guy (moxifloxacin and rifampicin) but everything I read on rifampicin is that MG is resistant to it.

[Steve378]

BBGAN, how did it go? Did it work for you?

[Vance2335]

That is not a cure.

[BBGAN]

Can you please provide the advice on natural treatments that have lowered your symptoms?

[stoopid34]

I know the feeling about getting some open ears.  I was told several times it was impossible for me to have MG with the meds I had taken.  I showed the doctor some recent scientific papers on the subject and he showed me the latest app on his phone that they use for prescription info.  They pay a yearly fee to keep things updated and for its use, and there was no mention of any resistance and it was still calling for a single dose of azrithromycin for treatment.

Let us know what you find out, please.  It would very well be worth a few thousand dollars to me to fly over from the US to France and pick up a dose of pills.....if I knew it would work that is.  

From what I can gather it takes 1000 mg 3 or 4 times a day for 10 days.  Pyostacine is the trade name.  The active ingredients in the US are only available in as Synercid, which is an IV only drug that has to be administered twice a day for at least 7 days.  I can't find any info on whether it has been used in the US to clear up a MG infection.  Even if it worked, it would be a lot cheaper to fly to France and just take the pills.

For an infection that affects 25% of NGU cases and that almost 20% of those experience treatment failure with moxi and 40% with Azithromycin, it amazes me the number of medical professionals who are unaware of it.  I really wonder how many people are suffering from misdiagnosis.