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Just diagnosed with genital HSV 1.. help!!

g10
Im a female.. I had intercourse once last August.. And after that, i started developing bumps, and a dry, burning sensation down there. It came and went and i saw in total about 5 doctors various times.. All, assured me it was nothing more than stress or folliculitis!... Then i decided to go once again, they cultured it and .. last week i was given the awful news that i have genital HSV 1.  The nurse was floored, since i had seen so many doctors and that none thought it would be herpes.  Also, since i have never even had a cold sore, she was surprised that my simptoms were the way they were, and not with a fever and the other typical symptoms.  I got the medication and im trying to cope with the news...
I dont know what comes after this>> Ive never been a promiscuous person, and still things have kept happening..
I've heard about false positives??? At this point is this even an option.. as far as testing again??
And what does anyone recommend?? Should i attempt suppresive medication. . or NO??


Im scared, so any advice would be greatly appreciated!..


















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Avatar universal
g10
Im sorry it took me so long to respond! and i agree with you on keeping in touch.. i've had a rough month with at least 3 obs!!!! i feel just the way you described itchy, dry and i also feel a burning sensation that comes and goes..
.. :( i posted another comment on 06/04 under (Recurrent Genital Herpes!! help!!) because i had another ob and was freaking out.. if you want to take a look and maybe we can comment back and forth?
Helpful - 0
Avatar universal
I hear you, me too. Now I am extra worried. Is it hsv or irritation and why is the acyclovir not working. I wish we could exchange phone numbers to really talk but I know it is a forum and I don't know how we would figure this all out to have our own little support group without everyone and their brother having our info. Here for you though either way and feeling the same way.
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Avatar universal
g10
Thank You guys all, so much for your responses and comforting advice! Its great to know that there's people out there willing to help out :)

I guess, it doesn't have to be the end of the world.. but its just so stressful to know that some people just dont pay attention or just dont care..  and as for me, ive always been so sensitive to things.. that things like bacterial infections have been pretty common for me! :(

I still dont know.. how in the world im gonna deal with telling any future partners???????????? (right now im gonna remain abstinent)..
Im gonna take all of your advice into perspective and really stop doing things like looking on-line!!! cause everything on here is so to the extreme.. And i agree with touching base and staying in touch! cause im so new to this and have yet to learn whats in the future..

One more question though.. It seems that the round of Acyclovir helped the few symptoms that i had.. But, now its been about three days and i feel .. somewhat of a burning sensation on the outside of the genital region (the pubic region).. I feel like the clothes when rubbing on my skin might be it.. but it doesnt seem to get any better.. Im not sure if what i need is another round of medication.. Or i may i have a bacterial infection as well???


Thanks guys!!
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Avatar universal
Hey, I am right there with you. Just got dx with hsv 2 and I too when through yrs of oh, you are fine, fragile skin, tears? No biggie, not herpes. One day I got tired of tears, itching, redness and irritations that came and went so after an exam, which, of course the Nurse Practitioner said, you are fine, is not herpes, just skin cuts. I said "Give me the blood test. I can't take it anymore." It came back hsv 2 pos on the herpes select. Trust me, I am right there with you. Let's all help and support eachother, eh?? It is so hard for me too and I am hating it. Weird as my husband has 1 and has had cold sores since childhood, thanks to his (dumb) mom. How he never got hsv from me, I will never know. How I didn't get his hsv 1 I don't know and wow, 14 yrs and I don't have his and he doesn't have mine? I figure I have had this at least 15 yrs. I remember getting irritated off and on for the longest time and wondering and worrying, only to hear the doc say, nah, not herpes, nothing to culture, just a small tear and some redness, maybe your laundry soap? Ok, that's my story. Let's stick together. What do you say? Here for you. Lord knows I am roughing it too and it is not like you can just go talk to anyone about this awful stuff. Email me and I will answer you as we are in this boat together folks!!
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Avatar universal
I do recommend another test to back you up. I am going to get another one too. I know redness and itching and tears don't just come and go and are nothing but I am like, wow, I have been with my husband when I have been so irritated it is not funny, and he never got hsv 2. I don't know. I am definately one for second opinions and another test if needed. I am going too and if it is, it is but it just seems strange to me that my husband doesn't have it there and that I haven't spread it to my hands, eyes, etc. lord knows I have put a and d on it and looked at it in the mirror, wondering what was bugging me so much. If it is so infectious I ought to be covered with it. Something doesn't seem right and yes, I am all about having another test/opinion. Let's touch bases on how things go, eh??
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101028 tn?1419603004
At this point it's hard to tell if you are one of the few who have frequent hsv1 genital recurrences or if it just so happened that you have hsv1 genitally and you were actively shedding the virus on the day you were tested. Have they also tested you for yeast infections and bacterial infections at all these appointments? What about other std's? or were they doing the ole look and see and declaring it's nothing routine?  

Hsv1 is considered the "milder" form of genital herpes. Not milder as in less painful but milder as in less recurrences. In about 50% of folks who have it - they never have another recognizeable recurrence of the virus. In those who do - the average is 1 additional recurrence the first year and then 1 ob every other year.  Only a small percentage of folks have ob's more often thankfully.  Hsv1 genitally sheds less often than hsv2 does so usually just avoiding sex during obvious symptoms is all you need to protect a partner.  Make sure your partner gets tested for hsv to know their own status though too. You can still contract hsv2 which would most likely result in more frequent recurrences.  If your partner has hsv1 also - then just avoiding sex is all you need to do.  

Definitely treat this with a round of antivirals just to see if it makes you feel better.  You can take a wait and see approach to deciding if you think suppressive therapy is warranted or not.  the herpes handbook at www.westoverheights.com is a terrific resource and there is also a wonderful patient counseling video there to watch too.

grace
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Avatar universal
I agree with SeBeca... it will get better and chances are you will never have an issue after this time.  I had the exact same thing happen years ago and once the initial episode was over, it never came back and I never had another problem.  

It sucks, but certaininly not the end of the world or your sexual life by a long shot.  Keep your chin up!  
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Avatar universal
Hi there,

Take a deep breath.  I am going through the exact same thing and one thing I can tell you is most doctor's are not educated on HSV 1 and STDS or have the resources for counseling.  IMy suggestion is to go to the STD forum and read some of Dr. HHH's responses.  I acquired this from oral sex with a partner who had no visible sores and no idea he had oral HSV 1.  It's not the end of the world and if you read some of the reponses from the doctor, HSV 1 recurrent outbreaks are generally less than HSV 2.  If you had a culture and it was positive, you don't need a blood test to confirm.  He also sites some great resources.  Don't go anywhere else than this site and where the doctor suggests.  There is just so much incorrect information out there.  Hang in there and keep your chin up.  It does get better.
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