SURVIVING NEUROLOGICAL LIMBO LAND - NO DX User Group
Memory problems?
About This Group:

This is a group for anyone who is currently living in limbo land with a neurological disorder but doesn't have a diagnosis. Many people are living with chronic and disabling neurological problems which mirror such diseases as multiple sclerosis, lupus, M.E., Fibromyalgia, Lymes disease, Vitimin D deficiency, Migraines, Parkinsons yet have no diagnosis and are left to literally struggle on alone. I have set up this group to help support people through their journey, whether its just for a moan, sharing a joke, experiences, advise on how to survive just plain anything. I know there are a lot of us out there. Anyone who feels lost, or needs to share or just wants a big hug please join, there will always be someone to give you support. OUR MOTTO IS: "we are still all in this together..no matter what point of our journey we are in...limbo, dx. or just joining...we are all here for a reason...to seek support, make a friend and find answers..."

Founded by MrsAristotle on October 2, 2009
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Memory problems?

Hi all!  I have been absent for awhile bc I don't seem to find a lot of answers and I haven't needed much moral support.  However, here I am again with pretty much the same question... does anyone else have memory issues/gaps?  Most recently I am having numerous tiny gaps where I can't remember anything seen or heard (etc) for no more than a few seconds.  I have had gaps here and there for at least three years now but most were missed without someone else pointing them out.  Now, I am having what may be missed-d as lapses in concentration except that I can say to myself alright... I'm not going to miss anymore directions (flashes up on the computer - playing a game with my 5 yr old) and I still do.

I have been tested for ad but don't have anything remotely like it.  Memory of everything during these brief episodes is gone, never to return.

I've been tested for seizures (sp?) w/o an episode, however, I can't watch trees or a train flash by wo problems...?  Strobe light doesn't initiate seizure.

I am diagnosed with neuro symptoms of unknown origin and fibromyalgia.  MRI's are pretty benign with poss MS.  I have a sizable lesion in right pet-apex but believed to be asym-marrow.  I have more problems with left side but no evidence of stroke(s).

Any thoughts?
8 Comments
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I had similar lapses around the time I got diagnosed with Lyme.  One time, I had quite the argument with my husband about where an insurance document had gone.  He said he gave it to me, I said he didn't.  He let me know later that he found it on the glass of the copier, where I had left it.  Yikes.  I did not remember that at all during the argument.  After he mentioned it, I had a vague memory of making a copy.  I have since disavowed responsibility for anything! ;D

Another woman on the Lyme forum described times when other people recounted conversations they had with her, which she couldn't remember at all, even after they described it.  Obviously, there is a neurological problem going on there.

I just figure that Lyme and MS and possibly other neuro conditions affect the part of the brain where the 'memory' tape is running, and sometimes it skips, or fails to record for a period of time.  A doctor once explained to me that a particular anasthetic works like that.  Consciousness and recording of memory are two different functions in the brain.  She told me what I said while coming out of the anaesthetic, and I had absolutely no memory until a couple minutes later in the recovery room.

I am a recent addition to this forum...Just out of curiosity, have you been checked out for Lyme Disease yet?  What are your symptoms?
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551343_tn?1350880995
Hi ricobord and buffy. I had the worse 2007 when i totally lost my memory for about 3 hours, that was so freaky.

Now yes i can do something and have no knowledge of doing it, cant even visualise doing it.It comes and goes and the moment it is particularly bad.

I hate it makes me freak out. Its called brain fog lol. Like you say when someone has MS or Lymes or similar they are neurologically challenged. x
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2012515_tn?1353879125
Hello to All!
I too have had short term memory loss of things(brain fog)and then later it may come back and sometimes only with step by step of remembering what was said or done to bring it back to mind but a few things I couldn't get but I try not to stress or cry too much because I've always been known for being organized,spelling queen and remembering things and dates well not so much anymore! Sad.:(

Wishing us all better days with our memories but!
Wishing you all blessings and happy days!
Tammy:)
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1760800_tn?1337789449
Hi all

Yes it happens all the time especially when I try hard to remember something.  Then all of a sudden when I stop trying it comes to me.  I also just plain forget to do things sometimes - I say to myself take that upstairs and get involved with something.  Then when I go upstairs I forgot to take up what I wanted to.  

I am like Tammy -  I used to be the one to always remember everything now not so much!
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1530171_tn?1362547225
Look into the jnk gene type 3 activation, associated with neuronal impairment leading to brain fog , memory issues and more.
Common with MS, LD, ME, FMS and other conditions.
Oxidative stress is the underlying cause.
If you all get tested for glutathione levels, you will find that,
-if not all of you, the majority has a serious glutathione deficiency.
This is directly linked to the jnk gene activation.
If you want  holistic suggestions to take care of this, let me know.
Cheers,
Niko
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551343_tn?1350880995
wow according to my test results i am deficient in glutathione levels. Will post later the test results of my deficiency's, upstairs at the moment and my paperwork is down lol. You have a wonderful knowledge Niko.
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Any suggestions or references you can give for glutathione deficiency?  I don't know anything about it.
Thanks!
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1530171_tn?1362547225
Hey Ricobord,

I replied earlier to your other recent post also with many references regarding Glutathione. (many people, like you, wonder why they have NEVER heard about this.)
The more you find out about it, the more you will understand.

Here's a link that has some pertinent information
from last year. Just look for my 2 replies.
http://www.medhelp.org/posts/SURVIVING-NEUROLOGICAL-LIMBO-LAND---NO-DX/New-Member/show/1496086

Hope this helps.
Niko
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