SURVIVING NEUROLOGICAL LIMBO LAND - NO DX User Group
spasms or spasticisms
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This is a group for anyone who is currently living in limbo land with a neurological disorder but doesn't have a diagnosis. Many people are living with chronic and disabling neurological problems which mirror such diseases as multiple sclerosis, lupus, M.E., Fibromyalgia, Lymes disease, Vitimin D deficiency, Migraines, Parkinsons yet have no diagnosis and are left to literally struggle on alone. I have set up this group to help support people through their journey, whether its just for a moan, sharing a joke, experiences, advise on how to survive just plain anything. I know there are a lot of us out there. Anyone who feels lost, or needs to share or just wants a big hug please join, there will always be someone to give you support. OUR MOTTO IS: "we are still all in this together..no matter what point of our journey we are in...limbo, dx. or just joining...we are all here for a reason...to seek support, make a friend and find answers..."

Founded by MrsAristotle on October 2, 2009
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spasms or spasticisms

Hi,

Can someone tell me if spastic hands and feet attributeable to neuro.  I mean I have been having some very painful spastism in my hands mainly the left.  And both feet have spastisms that made it unbearable walk.  I take tizanidine, baclofen, and gabapentin.  

But, it seemed that the spastism are getting worse and something stronger may be inorder.  Will, anyone with the same experience or knowledge of this help?

In case, I did not give my question.  I want to know if very painful spastisms are attributeable to my neuo.
4 Comments
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2012515_tn?1353879125
Hello Limbolander,
I can not relate with experience however, I have a brother age 40 that has HSP and a bacolophen pump inserted in his body to help with spastisity and the locking effect he gets
He has complained at times of pain.:(

He is being watched for ALS/PLS now.He also has beaten colon cancer but the chemo put a hard hit on his body

I will be lifting you in prayer and wishing for answers and healing.

Many blessings,
Tammy:)
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Avatar_f_tn
There are sources online that describe disease of the nervous system (primarily MS) as one category of conditions causing muscle spasms.  

Do you take magnesium supplements?  Blood tests for magnesium levels are usually not helpful as about 95% of our magnesium is stored in the tissues.  Our bodies like to keep the blood level stable, so if there is depletion, it happens first in the tissues. By the time a blood test shows it's low, it's extremely low.  Taking a magnesium ending in -ate is better absorbed than one that just says "magnesium."  Magnesium malate or magnesium citrate are fairly easy to find.  When I started taking magnesium, my neuro symptoms eased up a bit, especially the muscle twitching.

Do you drink plenty of fluids, especially water or something supplemented with electrolytes (e.g. Gatorade)?  Diabetes can also cause spasms, so keeping blood sugar in a normal range is important.

Have you tried going gluten free?  I definitely felt better when I did. It was a hassle at first, but I am used to it now.
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Avatar_m_tn
Thanks.
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Avatar_m_tn
This is useful information.  Thanks.
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