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1388618 tn?1288214350

AT A MORE LOSS

the gi dr just called.  all my tests have come back fine. i know that is suppose to bee good but to me it is not.
i am still suffering from the same symp. i started w. and now for no reason.
he did ask when my appt. w/ neuro 2nd opin was and it is 20 days and counting down. which still makes me wonder if the gi is part of the neuro probl. too.

but still having them say "we can't find anything wrong, just take some immodium to try and stop yourself up w/." just kills me. and terrifys me at the same time. i am so terrified that the neurologist are going to say the same thing when i go to them.
oh lord, NO offense everybody but i feel so alone. especially because my family is no support at all. and now if they hear what GI has said i will definitely be screwed. because they will think that i am doing this all to myself.

but really i am all by myself in this fight. i have to be my own advocate, and that is hard when no one espec. the professionals don't want to listen to you at all. everyone just thinks you are nuts. i have to do my best w/ my daily needs, keeping my house clean, finding my way to and from where i need to go because i don't want to take the chance of killing other people by driving my car. even though i am ask why aren't i driving? such idiots.
the state refuses to give me enough money to live on. ($17/mon in FS and partial medicaid) when my ssdi doesn't even pay all my monthly bills. especially when nutrional supplement drink are $8 a pack and only have 6 bottles in them and i have to try to get in at least 2 a day.

AND EVERYBODY IS TO BUSY HELPING EVERYBODY ELSE TO HELP YOU.OR THEY WANT MONEY TO DO IT LOTS OF IT..  I'M SO SORRY LORD FOR BING SELFISH.

I WANT MY INDEPENDENCE BACK PLEASE!!!!!!!!!!!!!!!!!!!!!!!! I WANT TO BE ABLE TO GO BACK TO WORK!!!!!!!

i am so terrified that the only part of the hospital that they are going to put my in is the pysch ward. and i don't need that. and i don't need that i need them to listen to me and stop ignoring me.
5 Responses
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1388214 tn?1301331216
I am sorry you are so frustrated.  Can you see a different doctor?  I agree, better to go to a different ER or ask for different doctors.

I hope you get treated better!

-Y
Helpful - 0
1386233 tn?1279931493
Wow, good luck.  Can you go to a different ER?  I don't know where you are, but where I am there are 3 hospitals within 40 minutes.  

I really wish you the best of luck!

Victoria
Helpful - 0
1388618 tn?1288214350
my gi problem are simple. when i eat and/or drink anything i get severe diarrhea. even the ensure plus isn't working. do to this i am dropping wt. like crazy and having to have iv fluids sometimes to replenish from dehydration.

w/ all that has been going on w/ my neuro stuff, i wonder if i don't have MS too. but the way my so called pcp is acting now. i have to worry how i am going to get the iv fluids i need if i need them again much less anything else. i refuse to go to the er. they really treated me like crap the last time i went into there and i refuse to go back.
Helpful - 0
1386233 tn?1279931493
Hi!  I am so sorry you are having these problems.  If you don't mind me asking, what kind of GI problems are you having?  I only ask this because I have been having problems with my GI since high school.  I have been to 4 different GI/Intestinal doctors in the past 5 years and had 3 colonoscopies and 1 upper GI.  They all turned up fine, so I was diagnosed with IBS, but then my PCP said "No, I don't think it's IBS".  So now I am left with nothing, no answers no help.

I have extremely horrible stomach pain, constipation and then diarrhea for like hours!!  It doesn't matter what I eat, I've gone on liquid diets, high fiber, low fiber, gluten free, no dairy and so on.  Nothing helps.  I eat something that disagrees with me and I know within 10 minutes and I better be by the bathroom and alone otherwise people will think I'm dying.  The pain is so bad that I will literally scream and cry.

Personally I think I have an area of my intestine that doesn't work properly or is somewhat blocked, I can fell it starting up by my lower left rib all the way down.

Now my PCP thinks it may be MS, but she doesn't know if my stomach problems would be MS, but that all my other symptoms match MS.  Now I am going to a neurologist.  We will see how that goes.

I want to let you know you are not alone!!  I wish you the best of luck!!

Victoria
Helpful - 0
Avatar universal
I totally understand where you are coming from and I dont understand these drs at all.

I have seen my mom go through pain and sickness w/no dx for years and now I am starting to go through it myself although my journey is just starting

on the other had, my father, who does have significant health issues, was hospitalized routinely several years ago and run every test in the world on and the only thing different at that time was that he was OD'ing on his pain meds, klonipin and neurontin.

I was so angry that he was given so much great care and attention and his new symptoms were all from him taking too many meds while people like you, me and my mom can't even get a dr to listen.

Helpful - 0
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