update

[ntbryentonrochard]

I just wanted to let everyone know that I recieved a copy of the letter that my neurologist has sent to my GP.  I now know that my first MRI showed 2 significant lesions. one on my cerebellum and one on my cerebral peduncle. The second MRI showed some slow resolution to these lesions (my old neurologist led me to believe that they were virtualy gone on my second MRI). The letter says that this was certainly a monophasic demylenating possibly post infectious event. The letter says that whether or not I will or have turned into a more chronic and repeating demyelinating event is not revealed clinically but might be revealed radiologically, hense MRI request. It says that the nature of post infectious acute disseminated encephalomyelitis can in some patients become recurrent which converts them to MS.
I know that this isn't really a question, I just wanted to share what I now know. I can't believe how just one letter from my new neurologist has told me more than I had been told in 10 months with my old neurologist. I still don't know if I will end up with ms but I feel much better knowing that I have a neurologist that wants to keep me informed and is happy to give me the whole truth about what is happening with me. I am seriously considering making an official complaint about the original hospital. They are useless!!!! Not just in this case but at all other times that I have had to use them for other things. I even had a homebirth with my youngest child because I didn't want to have her in that hospital. I feel so angry with them that something needs to be done about there incompetence. Anyway, enough ranting, sorry, I should be grateful that I don't have to deal with them anymore.
Thank you for listenting.

[jibjen]

I am glad you have a neuro who is headed in the right direction, closer to an answer or just some knowledge of what is going on with yourself must be a releif..Hang in there and I hope you get the full picture soon.

Jibs

[ntbryentonrochard]

Thank you for your message.
I will make sure that I start another diary. I kept one when things were bad but I stopped my diary as things were getting better and my original neurologist disscharged me (my GP was utterly disgraced that I had been discharged before I was completely better, hense the new neurologist).
I will try to take it as easy as I can (quite difficult with a teenager AND a toddler in the house...lol), and will take a look at the swank diet.
Thanks again,
            Nikki xxx

[MrsAristotle]

That is a good result for you.  So like we said earlier you have had a CIS which is proven with  the Encephalomyelitis disseminata. So it is really a case of wait and see.

In the meantime really take note of your diet and how you rest and pace yourself.

The Swank diet has had some really good results.  

http://www.swankmsdiet.org/

Everything and anything is worth doing. Keep an eye to on your B12 intake make sure you have a balance diet ok.

Rest too, if you feel tired rest dont push yourself.

As to your old hospital and doctor believe me I know where you are coming from, but is it worth wasting all of your good energy lol......it wont change a think they will still deal with people badly and you will waste some good energy lol.

I think you have now got a great neurologist.

Woop woop.  Big hugs. Mariaxxx