Idiopathic Intercrainial Hypertention (UGH )

[mommies4]

I just want to rant,,,  
  The Head pain is back. (Headache) just what I needed ! My Neuro took me off the
Acetazolamide that treats the Fluid from building up.Here we are 3 1/2 days later
with that nasty headache that IIH causes.So Its back on the Phone this morning
to call my Neuro. and eye doc to see what they might have up there sleve for me next !!
Yes I'm alittle worried,The Neuro seems to be tool happy,but maybe its just me.I know that
I can take 4 months of Steriods before they decied to Shunt me,OUCH I hate to think about that
but my options are getting narrow ..So today I wake worried ! I'll let you know what happens!

    THANKS for listening I needed to spill alittle this morning !!1 Fingers Crossed ...

[silkcut]

Hi mommies4 - how are you doing now? What did the eye doc say?

yep, wouldn't it be great to sit around the kitchen table for a good old chinwag and cuppa! (I think we'd soon sort the medical system out between us!)

bestest
sammyxxx

[mommies4]

Thanks to all of you,wish we were sitting around for tea instead !!
Today is better then yesterday,tomorrow should be better then today !
Still feeling some of the effects from ( ? ) my guess  the pressure buildup and possible
effects on some of my nerves...I'll see the eye doc monday 9;00 am ???


                                          THANKS AGAIN  MOMMIES4

[jibjen]

Hi,

Please always feel free to "let it go" here..I am sorry you are feeling this way..Pleas know we are all sending you good vibes and Best Wishes...

Jibs

[illinwithoutacause]

i am sorry you are feeling so bad, but i am glad you were able to vent a bit of your frustration here.  that's what this place is all about.

please take good care and know we're thinking of you.

best wishes,
binx

[helen41]

Oh dear. That does sound very scary. I'm sending warm thoughts your way. keep us updated