Is my neuro jerking my chain?

[MrsAristotle]

I had terrible pain recently in my jaw and face it was AGONY and then alongside this I had this weird click - click - click noise in my right ear which lasted on and off for about 2 days.

When the pain went I felt bad like I was having a relapse or something.

I had to write to my neurologist about something else but thought I would mention this pain in my face and jaw and the clicking noise.........just in case it was another clue to what is going on with me....

This is his answer:

"I am afraid I cant quite make sense of the jaw/ear pain, then the noises. Anatomically, the jaw joint and the ear are very close in position which may make sense of the pain, but it is difficult to understand the noises that lasted for a couple of days"....................

Now since then I had another bout and saw my GP and she told me the jaw pain was TN (trigimal neuralgia)......and was wondering if the clicking was muscle spasm. Oh so I did google and these are both classic MS symptoms so how come my neuro who is an MS specialist didnt know that????  The clicking is common and can be caused by myclonus (muscle spasms in my ear).....

I was wondering if i should challenge him lol...(to a dual lol)....

Is this nuero pulling my chain or what.....

I give up really........

[MrsAristotle]

Hi mommie well I am convinced that my nervous system is stuck on FULL lol. The switch needs some oil or something as I can literally be laying down and BUZZING and vibrating from head to toe, and I dont mean a nice vibration either.......ITS HORRIBLE.....

When I start to buzz and vibrate I know i am in for a bad time like right now.......

Pain ha I am a master of it lol I laugh in its face ha ha you cant get me down lol............

I said to my neurologist can you become a pain junky as I feel that is what I am.....

IF I didnt have pain I would realise i had died lol......

People look at me and say you look well.....YEH right of course I do but if god make pain the colour of a rainbow I would be red, yellow, green, blue violet orange and indigo but with no chance of a treasure at the end lol,

I find the way I cope with my pain is to focus on something else it does work, but that is why my pain is worse at night because once I have woken up I have no where to go just lay in the dark thinking to myself come on go back to sleep lol.

You have to larf or else cry and I have done enough of that in 4 years.........

[mommies4]

I have yet to have a Dr. tell me What What my pain is much less then Why  It's happening.This pain you talk of ,It was a ER day for me,I had so much going on.It was for a few days,left side of my face  Felt like someone had hit me with a bat.If I applied alittle pressure to it,it felt better for that moment .
    
     That er day I never even told or mentioned it.makeing a long story short .... Other then being told again You need a Neurologist (i know ) giving me flexeril sending me on my way.
     Afew weeks earlier that month I had a ER visit at 1;00am with yet another odd random sx ( again) that made no since it was a horrible pain.I have had a Doc tell me ( another story)  to try and devert my pain it seems to help,at the time I had spent a few days in cronic pain and became extremly angry and let him have it  Clearly I had been pushed to my limit. ! OK and maybe I was wrong,however.

         STORY BEING TOLD         As I was walking out of the ER had called my husband back to come and get me ( we have kids & have to compromise )  I remembered That The 1;00am ER visit earlier the The Broken Dr. that I yelled at,I did let him have it,was concerned and priscribed me chk the spelling- Lamictal , anticonvulsant.

     I TOOK IT  and the pain stopped and then I have not felt it since. Beleave me I have not forgot either !I have had a few things happen ,not happen again for days,weeks or months,and then return. I have lived the last 14 months in cronic pain and in that time can only remember a few days TOPS feeling,not great but OK and the pain returned.

So the point I was told my wires were crossed as they say.

One more thing,sorry I hog the thread,So much goes on in my head I have a hard time makeing a long story short ! ( @ :      Sooo...Wire's crossed - Lamictal-, He said other uses is that it tries to somewhat trick the CNS in beleaveing it is actually not happening , whatever pain is going on ,in my case that horrible cheek pain.

                                        Be WELL !       Mommies4

[MrsAristotle]

Hi well the pain comes and goes now and seems to also have a bearing on my hearing....

My doctor just said its all part and parcel of what ails me. I have had neuralgia now under my arm (agony), across my ribs (they thought I had shingles) and now in my face....Its a nerve thing.

I am writing back to the neuro will send a copy on here lol. I havent felt like it just lately as my little cat has been very sick sadly had to have her PTS on Monday she had aggressive Leukemia.

I am giving up though with neuros as they are just not able to tell me it is MS because of the MacDonald criteria, but if not MS then what is it........It isnt M.E. or fibromyalgia, that only leaves MS or conversion disorder.....

Thanks for caring guys. Big hugs Maria.xxx

[theasian]

it's so annoying when they think that they can just say something as if we are daft and they expect us not to know what's really going on. it must be so frustrating, i know that i get extremely frustrated with things like that.
i hope that the pain at least clears up a bit
take care

[illinwithoutacause]

hi maria,

this is so incredibly frustrating.  i don't understand how these individuals can call themselves experts at anything with this kind of business going on.  i am so sorry.  does your GP have any insight for you about the TN, or did she just slap a label on you and send you on your way??

i understand wanting to give up, but have you given any further consideration to the steroid treatment beforehand?

best wishes to you,
binx