Hi TNT,
I've been reading your postings and I'm really sorry that you're so sick. I'd really encourage you to travel the 150 miles to the university center where you can get some answers. In medicine, sometimes there's not a clear picture of what's going on and it seems like your case falls within this category. These centers can usually acommodate you in a one day visit. Call and ask for this type of service, in which they know you're traveling from far away and try thus, they'll schedule everything on the same day....so you don't have to continue coming back without a reason. Think that they may be able to find out what's wrong with you and help you....so you can play with your kids again :-)
I wish you the best and will keep you in my prayers
Hi There is one around,it is about 150 miles from where I lieve at.I really don't want to travel that far.I don't know what an ANA test is.What is it?I just want to start feeling better again.I miss playing with my children.Yesterday evening I had severe leg aches,I couldn't walk because of the pain.My legs are all ways going out on me.I all so have trouble remembering what day it is.I for get how to use my fingers and hands.Some times when I am walking,I will start going backwards and don't why.I for get how to do little things,tieing my shoes,buttoning my shirt,or how to sit down in a var.I know all of these things sound weird.It's weirder for me,because I use to not be this way.I use to be a teacher,pre-school.I had to give it up due to doctors orders.Because I was having a hard time then.It has progressed over the months.I look in the mirror but I don't see me know more.I see a shell of my self.All hope gone of ever finding out whats wrong.TNT406
Regarding blood thinners -- people who have had a clot take blood thinners to prevent a future clot....of course this depends on your situation.
Your symptoms are a little more severe than the thyroid panel from last week -- suggesting it may be more than thyroid. You have had an ANA test right? Also, a gastro-enterology evaluation may be helpful given your stomach, etc symptoms.
Tough case - sorry you are going through so much. Is there a university center in your area for a more thorough evaluation?
Hi there, I just wanted to add after looking at your last posts, I am very surprised that you have not had an ANA done, that is great advice, with all of your joint pain and such, and so many of the symptoms of those connective tissue diseases resemble thyroid disorders. In fact, I was first diagnosed with Lupus, because of all the similiarities between the two, however I did not have a rash, which was common with Lupus, and that was it, but the ANA helps diagnose a list of auto immune diseases, I am so shocked I can't even express, that none of your doctors or specialists have thought to look at this. Look up autoimmune disease and see websites, that lists these diseases such as Lupus, Rheumatoid arthritis, and so on, look at those symptoms, I think you will be shocked as well. Good luck. I think Dr Mark is right, this is a good test to check. Shannon
Hi there, I agree with Dr Mark, you have been having so many problems, and I would love to see you get some answers, you are young, and have so much of your life yet to live, My hope is you get the answers that you are searching for. It's a long drive, but just imagine, being able to find out what's going on, I wish you luck TNT, I hope the neurologist you are seeing, might be shedding some light on what is going on, I'm with Dr Mark though, I just can't see thyroid being the whole problem, it sounds more serious than that, there missing something somewhere, and I pray that they find it, Keep me posted. Shannon
ANA is a blood test which screens for problems such as Lupus.
I understand your reluctance to travel 150 miles, but you are young to have all these problems and I do not think that thyroid problems as the only cause.
Hi no I am not on blood thinners.Because of the blood clot.I guess you could say I am a hard one to treat.Not much fun huh?I all so wanted to let you know some of the other things that have been going on with me.My hair is falling out more you can see my scalp in some areas.Thats another thing that tipped my neurologist off.I all so had gained 5 pounds.I use to weigh 155 I now weigh 160.My voice is more hoarse,and my throat is more sore.I don't eat that much because I don't feel real hungry.My husband is all ways trying to get me to eat.But I just don't have an appetite.I am all so having problems with my bowels.I am constipated more than usuall now.Some times I don't have a bowel movement for a week or two.My skin is more dry and flaky all so.I went back to the hospital this morning and had my blood redrawn.Hopefully they will get it right this time.They deleted my other blood tests in there computer.They said that they where sorry,the one that deleted them put in some thing else.I guess it worked out for the best though.Do you think these symptoms are coming from my thyroid?Thank you TNT406.
Not an easy question - regarding the thyroid and exposure to radiation as an infant - an ultrasound should be done to exclude a suspicious nodule as rad exposure as a child increases risk of thyroid cancer. The thyroid blood tests "normal" to me means TSH 0.4-2.0, normal T4/T3 and negative thyroid antibodies - if this is the case - it's not likely the thyroid as source of symptoms.
I would consider an ACTH stimulation test for adrenal given the low/normal 8am level (if by that you mean <11). Must check testosterone as well as IGF-1 (growth hormone test).
The sore joints and fatigue could be a rheumatologic problem - check ANA (lupus screen), rheumatoid arthritis, markers of inflammation, etc.;...
The lack of sweating/dry skin may not have an easily treatable cause.....
Those are the endocrine suggestions -- good luck....