TSH has been consistently between .4 and .8 for the last 18 months, with symptoms of hyperthyroidism for the last 3 to 4 years. T4 is usually at the upper end 1.7 or 1.8, and reverse T3 has been high with T3 high normal. Excessive sweating, racing heart, moderate high blood pressure, anxiety, increased thirst and appetite were symptoms the past 4 years. More recently symptoms have changed to tachycardia, internal tremors, convulsive feelings, and fatigue, along with increased appetite with unwanted weight loss. Ultra sound which showed 5 nodules. 2 tiny right lobe nodules 4x3x5mm, and 3x2mm. One large 11x10x7 mm in mid right lobe, and a prominent 8x7x6mm in lower right pole (this one choked me during biopsy). Also one 1.3x1.3x.8cm on left lobe. Single left mid pole and lower right pole nodules were biopsied and were benign.
The past year I have had calcium levels of 10.3, 10.2, and consistently 9.9. It dropped to 9.1 at one point. Urine Calcium is 352, highly elevated for a very low calcium diet. Intact PTH has always been normal, although it has been higher lately in upper 40's and 50's. Vitamin D was 30 last year, and I reacted very poorly to supplementation. My body converted most of the D3 spray to calcitrol and it went to a level of 115 (72 is upper end I believe). I have just crossed over into the osteopenia range in my neck -1.1, and am .1 away in my lumbar on a Dexa Scan. Surgeons, Primary Care and Endo have all told me I have hyperparathyroidism, then I don't have it. Then I have it, then I don't. Surgeons have agreed recently to do a mini parathyroid surgery to deal with both.
All day long it feels like I'm stuck in the calcium feedback loop. High PTH then high calcium, hyperthyroid storm (calcitonin) then low blood calcium. All day I alternate between stiff muscles and jello. Confusion and hyperactivity. Abnormal energy and fatigue. Is it possible that the diagnosis of hyperparathyroidism has been more difficult because of hyperthyroidism?