Aa
doctor says symptoms are not related??
Hi. I was diagnosed with hyperthryoid a few months ago and was on meds up until a few weeks ago when my levels started heading towards hypo. I have been having the same, constant symptoms for months now and have been to other doctors to rule out another casue. when I went back to my doctors (both the endo and internist) they both told me that they feel the symptoms are NOT related to the thyroid disfunction. However...they have not been able to find another cause. my doctor says that if the results form the mri come back OK he will not be able to give me a diagnosis of anything and refer me to a therapist. So he is saying it is all in my head then?? I find that hard to believe..right? Even when i told him about this website and how many other hyper/hypo patients have complainned of the same symptoms his response was "they are all very non-specific symptoms and could be casued my a number of different things". I just know my body and i know that not everything i feel is "in my head". I am so frustrated and even my family is starting to think it is all in my head as well. I guess because the doctors can't come up with another cause. ?? I would think that i should chagne doctors and get a second oppinion but i am already seeing one the TOP endo doctors on the east coast. what to do?
Melissa
Melissa
what are the symptoms? I am guessing it was a pituatary MRI? What other tests have they done to rule out problems?
not sure what a pituitary mri is but they just did one of the neck and head. other symptoms are dizziness/lightheaded..vision disturbances.....are the most problematic. sometimes i feel like i am going to pass out and my whole body feels wrong...like in my veins or something. weird i know.
Hi Nicobella,
When they test people's pituitarys, usually it's to see if thyroid problems are secondary caused. The pituitary can have a tumor, usually benign, that can cause either lack of hormone release (ei: TSH) or excess release. So both hypo and hyper can be caused by the pituitary but is much more rare than that cause by the thyroid itself.
I think it is totally OUTRAGEOUS that Docs will believe that symptoms are in a person's head and that the thyroid findings were just "incidental"!
My VERY STRONG OPINION, is that the thyroid disease itself causes unwell feelings at times, even with labs all normal. We do afterall have autoimmune disease in our bodies!
I also believe it is a farce, for Docs to put such extreme faith and confidence in every medicine-treatment. We of course have every hope in our treatments but like all treatments, people have variable results! If it were'nt for such large numbers of people, retaining symptoms after thyroid treatments, I would believe that those still suffering symptoms after their treatments, were rare. They in fact are not!
Besides unresolved-symptom complaints by people all over the www, there are other proofs of this, such as the Mary Shomon "Quality of Life Survey" in which "1,000" thyroid patients still complained of "fatigue, depression, joint pain, weight gain etc....", even with treatment and TSH levels at optimal levels, in fact Mary Shomon is one who suffered this same senario for years and is the very reson she became a thyroid patient advocate.
We need to get TSH in optimal range, improve diet, exercise, sleep habit, and follow our Dr.s advice where possible. If after this we feel addition of an antidepressant/therapy will help, by all means we should do it BUT, if it really is caused by the thyroid disease, these things will have limited results, in fact in some people with ongoing thyroid problems, antidepressants sometimes worsen some already present symptoms.
Others are helped greatly but my question has always been; "how long can one stay on an antidepressant?" and; "when you do finally need to wean off of one, what happens then?"
Websites I researched stated these were created to be used for short periods of about 6-months, up to a year but Dr.s act as if they are for lifelong treatment. Who got misinformed here? What are the long term affects on liver function, brain chemicals, heart, possible internal bleeding (as eported on CNN) etc.......................................
Sorry to rattle. Nicobella, you are not alone is this struggle, I assure you!! God Bless You!
When they test people's pituitarys, usually it's to see if thyroid problems are secondary caused. The pituitary can have a tumor, usually benign, that can cause either lack of hormone release (ei: TSH) or excess release. So both hypo and hyper can be caused by the pituitary but is much more rare than that cause by the thyroid itself.
I think it is totally OUTRAGEOUS that Docs will believe that symptoms are in a person's head and that the thyroid findings were just "incidental"!
My VERY STRONG OPINION, is that the thyroid disease itself causes unwell feelings at times, even with labs all normal. We do afterall have autoimmune disease in our bodies!
I also believe it is a farce, for Docs to put such extreme faith and confidence in every medicine-treatment. We of course have every hope in our treatments but like all treatments, people have variable results! If it were'nt for such large numbers of people, retaining symptoms after thyroid treatments, I would believe that those still suffering symptoms after their treatments, were rare. They in fact are not!
Besides unresolved-symptom complaints by people all over the www, there are other proofs of this, such as the Mary Shomon "Quality of Life Survey" in which "1,000" thyroid patients still complained of "fatigue, depression, joint pain, weight gain etc....", even with treatment and TSH levels at optimal levels, in fact Mary Shomon is one who suffered this same senario for years and is the very reson she became a thyroid patient advocate.
We need to get TSH in optimal range, improve diet, exercise, sleep habit, and follow our Dr.s advice where possible. If after this we feel addition of an antidepressant/therapy will help, by all means we should do it BUT, if it really is caused by the thyroid disease, these things will have limited results, in fact in some people with ongoing thyroid problems, antidepressants sometimes worsen some already present symptoms.
Others are helped greatly but my question has always been; "how long can one stay on an antidepressant?" and; "when you do finally need to wean off of one, what happens then?"
Websites I researched stated these were created to be used for short periods of about 6-months, up to a year but Dr.s act as if they are for lifelong treatment. Who got misinformed here? What are the long term affects on liver function, brain chemicals, heart, possible internal bleeding (as eported on CNN) etc.......................................
Sorry to rattle. Nicobella, you are not alone is this struggle, I assure you!! God Bless You!
sorry to hear your feeling this bad nicobella. Have they r/o adrenal insufficiency? I guess that's why they did the MRI? to take a look at your pituitary?
It's not in your head, and unfortunatelly your Dr is not in your body to know how you excatly feel. I really hope that when Drs can't find a reason for how you feel wouldn't immediatelly say is in your head. I'd get a second opinion regardless...
It's not in your head, and unfortunatelly your Dr is not in your body to know how you excatly feel. I really hope that when Drs can't find a reason for how you feel wouldn't immediatelly say is in your head. I'd get a second opinion regardless...
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