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To all Forum Participants

Please note:

Dr. Lupo will be out until 6/21, the forum will be closed to new questions until then.

Regards,
Med Help
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Avatar universal
Ella,

Good morning.  I am struggling to get diagnosed as I have all the symptoms, but not the test results to back it up.  I find it so interesting all the people with these hugely out-of-whack tests that don't have symptoms and the same number of people with symptoms that have "normal" test results...makes you wonder.

What I wanted to suggest is having your adrenals tested.  In doing a lot of research, I've seen mentioned over and over that increasing thyroid meds when your adrenals are fatigued can make your symptoms worse.  Perhaps that is the case with you.

If you haven't already, go check out the website: www.stopthethyroidmadness.com.

They have adrenal self-tests and a whole forum dealing with adrenal issues and thyroid.  They can answer questions and there are other topics that may help you find other possible causes for your reaction.

I wish you luck in your efforts to regain your health.
Helpful - 1
Avatar universal
I don't know much, but from what I have read and understand, distinguishing a benign neoplasm from a malignant neoplasm based on cytologic analysis of fine-needle aspiration (FNA) biopsy is not possible.  Vascular and capsular invasion are the two main factors that differentiate carcinoma from adenoma. My understanding is that an adenoma is nothing to sweat about at all but the other is very progressive.

If your  H
Helpful - 0
Avatar universal
Thanks so much for the info...I will check on it!!
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Avatar universal
Your not feeling well, tired, puffy face, irritable can be from your levels not low enough as yet. When you have been on  Synthroid for 6 to 8 weeks go have your levels checked again.  If you are still feeling not well, etc. don't be satisfies if doctor tells you that your levels are normal, what's normal anyway. What is normal for me may not be normal for you or the next person, for we are not all alike.  Someplace in the Labs range there is a place for all of us to where we will feel our best.  And if not, then perhaps something else is going on and we need to have other health conditions ruled out.

Belly swollen can be from many reason and health conditions including hypo.  I just corrected mine which was due to certain foods.  But I'd have doctor check it out because it could be a serious issue or life threatening condition.

Good Luck.

~~~~~~~~~~~~~~~~~~

I am not a Doctor or in the Medical field.
My statements and comments are meant as
information only, not as a diagnose or treatment,
for that is between you and your doctor.
Helpful - 0
Avatar universal
I have been on a generic of synthroid since may 18th 2006.  I was not feeling wel, tired, puffy face,irratable, Dr said to stop the generic and only take the name brand Synthroid for my Hypothyroidism. The one thing that I have noticed is I am always bloated.  Is this a common side effect? I feel awful with this big belly, no matter if I eat a little or a lot. I do not seem to have gained weight anywhere else but my belly is swollen. Will this subside? Is this a "get used to it" side effect.....HELP Please!!!
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Avatar universal
The thyroid is a troublesome little gland.  I have been battling with mine for over 4 years now.   I am lucky enough to live in the part of the country where people from all over the word travel to  for their medical issues.  However,  when the brightest of doctors disagree over medical treatment it is so frustrating to say the least.  Your mom sounds a lot like me. I went to the e.r. several times over the past year with symptoms of feeling like there is something stuck in my throat and choking.  I have had gastroscopy (gastroenterologist)  and also a small scope that went up my nose and down my throat to lookaround (ent).  Nothing was found.  I had a thryoid ultrasound and it too was fine.  I now have recurrent hoarseness and laryngitis.  My latest thryoid ultrasound shows some type of abnormality such as goiter although my throat is smooth.  My labs. have been normal for 7 months so I am not on any meds. for thyroid right now.  I have Graves disease by the way.  When my heat rate was going up high and quickly, I had an ekg stress test.  My heart itself is normal but I may have hyperkinetic heart.  This means heart rate can go up very quickly and very high with very little effort.  Your doc. may want you on a beta blocker to lower heart rate and keep it at a low rate. Some docs. say this is thyroid related, endo. says if thyroid tests are notmal it is not thyroid related.
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Avatar universal
I am facing a completion thyroidectomy soon.
I had a partial thyroidectomy 15 years ago and also
had 2 parathyroids removed.
I am told I need to have the rest of my thyroid removed
due to FNA Biopsy results that a Hurthle Cell neoplasm cannot be ruled out.
However I am having conflicting advice from Doctors, some say
that I can watch and wait follow up with another biospy, ultrasound, etc.
Others say it needs to come out.
My greatest concern is that the remaining two parathyroids will be damaged or removed.
I was on synthroid on and off for the past 15 years .
I have been off of it for several months becauses my dose was to high 125 mgs. and I became hyperthyroid (no fun!!!!)
I am currently off the synthroid and my TSH is 3.0
and I do not know what te FreeT4 was I was told it was normal,
the Doctor does not check FreeT3.
I am a wreck and do not know if I should proceed with the surgery or not.
Would like to hear from anyone who has had a complete thyroidectomy and how there health is now.
Sorry this is so long.
Thank you.
Helpful - 0
Avatar universal
Hey, on my test results it just says T3 Uptake.I am not on estrogen and right now my GYN says that I am in perimenopause - having horrible periods.  Go back to see her soon - don't take birth control and she doesn't want to give me a low dose estrogen b/c of my family history with breast cancer.
What's the difference between FT3 or 4 and T3 or4? So, if my doc ups my meds again, would that work out all the kinks, you think?  And also, would that help with the nodules they found on my thyroid?  I guess I am asking some silly questions and taking up space in the forum but asking my doc questions and getting an understood answer is next to impossible - it's sort of like she thinks that I am questioning her in some way - almost like she's offended.  I am looking into finding another gp.  Once again, I really appreciate your willingness to explain all this to me.
Thank you so much!
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Avatar universal
Are you sure T-3 is not FT-3?  No Matter.

If you are on estrogen whether by meds or nature (child bearing years) the FTs should be done because estrogen interferes with the T levels but not the FTs. actually they should be done regardless because it tells whether the thyroid is performing properly.  
Haves these Labs done - TSH, FT-3, and FT-4, and, to set your mind at peace to know definitely, have antibodies done for Hashi and Graves' - some people have both autoimmune disorders. Your levels don't relate to Hashi however I could be wrong.

Your levels are hypo so you might want to tweek up meds to the next dose and slowly work up from there.  TSH of around 1 - 2 is optimal for most people to feel well and avoid having hypothyroim symptoms and also weight loss is easier, they say (its harder for me but I am hyper).    When your TSH comes down, then the F/Ts will go up more into Labs range.  By the nature of thyroid disorders we will find it necessary from time to time to adjust med dose throughout life.

When TSH is just right then your cholesterol should come down some and with avoiding cholesterol and processed foods should also help in lowing.  Triglycerides should come down with abstinences from alcohol and sweets of all kinds.

Good Luck!

~~~~~~~~~~~~~~~~~~

I am not a Doctor or in the Medical field.
My statements and comments are meant as
informational guide only, not as a diagnose
or treatment, for that is between you and your doctor.

Helpful - 0
Avatar universal
IMO I definitely only pay close attention to the Ft4 and Ft3.
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Avatar universal
T3 Uptake makes sense now and explains the level.  
Now I need to take back my comment about Hashi because F/T-3 with the F/T-4 along with TSH relates to Hashi.  However you are hypo which the T3U confirms.

Total T4 Reflects the total amount of T4 present in the blood, the protein bound which is unavailable T4 and the Free T4. Note that high levels of estrogens from birth control pills or pregnancy, etc. can increase the amount of the protein that binds T4, giving misleading elevated Total T4 values which can look like
Helpful - 0
Avatar universal
Sorry, meant to post that too! Brain is on overload but foggy!lol
Limits:
TSH 0.350-5.500
T4 4.5-12.0
T3 24-39
Free Thyroxine Index 1.2-4.9
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Avatar universal
What are the Labs ranges for TSH, T4, T3, and Free Thyroxine Index????  Your T-3 is in question but need the Lab range(s)to comparewith. Thanks!
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Avatar universal
Just thought I would ask about your mom?  Is she doing better?  hope so.  Sounds like you really have your hands full dealing with her medical stuff.  Just a question I though I might ask is if you have had your thyroid checked?  It does tend to run in the family.
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Avatar universal
Hey, just looking at some tests results.  I am going to post these and maybe you could make some sense of it.
These are in chronological order:
11/30/04
Uric Acid Serum  5.1 normal
Antistriptolysin o Antibodies 229.1 High
C- Reactive Protein, Quant 5.5 High
Antinuclear Antibodies - Negative

Thyroid Panel
TSH 5.514 ( a tad high)
T4 6.2
T3 25 (on the low end)
Free Thyroxine Index  1.6
Sedimentation Rate-Westergren 15
6/28/05
Thyroid Panel
TSH 5.60 - high
T4 5.1
T3 25
Free Thyroxine Index 1.5
11/05/05
Thyroid Panel
TSH 6.814 high
T4 5.1
T3 22 low
Free Thyroxine Index 1.2
2/28/06
Hepatic Function Panel - all within normal limits
Lipid Panel - high cholesterol, high Triglycerides
Thyroid Panel
TSH 5.508
T4 5.1
T3 25
Free Thyroxine Index 1.3
5/26/06
Cortisol 8.0   Limits 3.1 - 22.4
Thyroid Panel
TSH 7.014
T4  5.1
T3 24
Free Thyroxine Index 1.2

I know that this is not all of them but just a portion - still waiting for more copies from GP.  Since I basically only have the limits to go by, without really knowing their meaning, can you make sense of this?  What else would you suggest if it were you?
I can't thank you enough - it helps to atleast know what I am looking at.
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Avatar universal
Hey,

It really doesn't make a difference if you have Hashi, unless you personally want to know and don't mind paying for the extra expense.

You are already being treated and there is no other, or different treatment for Hashi.

Your TSH and both FTs on how they relate to each other will tell  and then antibodies will confirm.  Anti-TPO (thyroid peroxidase) and the anti-thyroglobulin
Thyroid peroxidase (TPO) antibody (TPOAb).  

Any doctor can order the test, they just have to know how to read them and its so simple I am sure that will know how.

If you post regarding them, get hard copies with the Lab ranges.

Your symptoms are either that you are not at the right level for you and you are still too hypo or something else is going on.  Adrenal/metabolic symptoms are close to that of thyroid, you might want to explore those if your levels are not the issue and/or other health conditions that share the same symptoms that your are experiencing.



Good Luck!

~~~~~~~~~~~~~~~~~~

I am not a Doctor or in the Medical field.
My statements and comments are meant as
information only, not as a diagnose or treatment,
for that is between you and your doctor.
Helpful - 0
Avatar universal
Hey, hope you can help me make some sense of this.  I posted on the undiagnosed forum about my thyroid u/s results.  But heres my question.  I have been hypo for years - been on synthroid and now on Levothyroxine. After reading alot about Hashi I think I may have that.  What tests need to be run for that?  Can neuro do it?  Does my gp need to do it?  Or should I wait for endo doc on July 21.  Personally, I have been having these symptoms for many months.  I have the puffy eyes, "moon face", hair loss, distended abdomen, etc.....What is your personal opinion?  I would appreciate any info or help you can share.  Thanks!
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Avatar universal
thank you for your help mom had a thyroidectomy on 6-13-06 unfortinatly her multiple scelerosis acted up and just took her to the er only to find out she has a blood clot in her lung if ya wana know how the out come turns out to be just ask and ill keep you posted thanks again ~willow~
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Avatar universal
Hello, everyone.

I'm looking to see if anyone has experienced anything similar to what I'm currently dealing with.

I'm 36, and I was diagnosed by my OB/GYN this past March as hypothyroid, with a TSH of 7.5.  He put me on 100 mcg's of synthroid.  Within two weeks of taking the synthroid, I began having heart palpitations and extreme shortness of breath.  I stopped taking them for a couple of days, but began to feel worse so I continued with the medication. About three weeks later, I nearly passed out in the store.  I decided then to completely stop...that was the first week of May. Just over four weeks from when I initially began with the synthroid.

About 7 days later I began to experience muscle pain in my upper legs, which eventually spread to my entire body.  The overall fatigue and muscle fatigue became overwhelming. I visited an endocrinologist on May 31 and a blood test revealed I was now HYPERTHYROID...in less than 8 weeks I went from hypo to hyper!  

The muscle pain and fatigue has literally crippled me.  I cannot do any much beyond lying down.  I'm litigation paralegal, and I work long days, and I'm currently unable to even drive to the office.  Showering causes me to have to lie in bed for at least a half hour to recover.

Last week I had a radioactive iodine scan, it revealed no tumors, and the diagnosis is thyroiditis.  The doctor believes I may have a virus attacking the thyroid.  At this point the frustration, and inability to do my job, is stressing me out beyond belief.  I need some answers somewhere to help me get on the road to recovery.  

Anyone ever experience the same, or something similar?
Helpful - 0
Avatar universal
Bananie22

Thank you for your kind words and appreciation.  

I am still researching and learing myself.  There is a lot of
questions to thyroid issues which can be overwhelming.
Its nice to have people to learn from and to share with, and
we all can learn from each other, I'm sure.

Good Luck!

~~~~~~~~~~~~~~~~~~

I am not a Doctor or in the Medical field.
My statements and comments are meant as a guide only,
not a diagnose or treatment. That is between you and your doctor.
Helpful - 0
Avatar universal
Hi I know the doc is out but perhaps someone has a similiar situation?

Im 39 and have been exhuasted for about two years. I do have a 24 month old but I have noticed headaches daily low body basal temps under 97 every morning.  Fatigue, QUICK hair loss all over and most noticable on the top behind the bangs (no history of familyhair loss) very heavy periods I get cold and my feet turn bluish upon cold, I cant sleep and I am not getting depressed.  I am thin have always been so no weight gain and no constipation at all.

I have had autoimmune testing for Lupus and also checked for Rhumatoid arthritis.  I had my thyroid checked one year ago and was normal, had it checked 6 months ago and it was normal.  I don't know what to do at this point I am feeling very hopeless.  Was advised to see a dermagologist but what can he tell me other then my hair is thinning?  I feel not right something is off.  Can anyone in the same boat offer some advice to me?  plz email me ***@****
Helpful - 0
Avatar universal
You've been very helpful to a lot of people on this board.  People are researching their conditions, and I for one found your input very helpful (especially since the doc's away and people are still coming to the board with questions).  So I just wanted to thank you for your assistance to those of us who are rather "new" to all of this (I'm a year into it and STILL have loads of questions).
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Avatar universal
Ok I have looked and I know that your not that close to me, I live outside of Twin Falls but have a doctor that is a good ENDO in Hailey.  He treats the symptoms not the ranges.  He's good.  There are several in Boise as well.  The one I see is good.  He is the only ENDO in Hailey, that I know of.  So you could look him up.
Helpful - 0
Avatar universal
I have Graves' disease in which I have read and searched info.on thyroid issues. And participated on thyroid forums for 9 years.
So what I relate is from my personal experience, others experiences and reading info. which is mostly from medical and  thyroid orginations sites.   I am not a doctor or in the medical field.  I just want to be of help to others which is ment by suggestions only.

Why, have I offended you?
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