i was struglin whit all these simptoms , so tired from apoitment to another apoitment, test and doctors i give up ,i'm tired of been tired of been sick
I suffer from a very bad buring feeling on the back of my right side of my head, it travels down to my sinus area. I have been to the doctor and currently on Flinisolide nasal solution & Alocril eye drops. They kinda control my allergies but not the very painful burning feeling. Has anyone any advice for me as to how to make this stop or even what you advise me to try. Thanks
I have been experiencing neck stiffness and have a red spot at the base of my skull that has a burning sensation as if acid has been poured on it. One doctor told me I have a bone spur on the base of my skull and prescribed anti-inflammatories but doesn't seem to be working. Can't sleep and I am crawling out of my skin please if anyone knows of anything that sounds similar please help
Topomax? Isn't that for seizures? My neuro did prescribe Lyrica..but after I read the side effects...I'm not sure if I should take it or not. One of the side effects could be weight gain or water retention. I'm already overweight and have mild diabetes. He prescribed this for my headaches and poor sleep. I also have fibromyalgia. I'm a mess LOL.
One of the side effects of topamax is weight loss and that might be why they have been giving it to people with PTC. My neuro told me that yes it is a antiseizure medication but it is also for people with chronic pain associated with illnesses like fibromyalgia and PTC and that is what I have chronic pain.I told him that I was afraid of the side affects and that I wasn't even sure this med would work but he assured me that the benefits of this med will far out weigh the small risks associated with it. I still haven't taken it because I am going to try and get pregnant when all this testing is done so I decided to wait. He said that the side affects of Topamax are less severe than those of Diamox.I also have fibro and I am also a mess.Do your doctors know what is causing all this with you? If not how long have you been feeling this way?I hate to pry but your story sounds so similar to mine and I would love to know more about what your doctors tell you and how they are managing your illness.
Your symptoms sound just like mine and I do have increased pressure. You are probably right about the doctors not wanting to do a tap, I don't think they would have gave me one either except my csf is abnormal and they wanted to check to see if it still was and thats when they found out that my pressure was up and I currently do not have pappiledema. Can you ask your doctor to give you diamox to see if this will help with stmptoms? You might want to ask abut Topamax I see alot of people on the PTC site are on it and seem to do pretty good they might call it dopamax because I heard it causes drowsiness.My neuroligist wants to put me on it but I am going to try to get pregnant after all this testing is done and he said it is not safe for baby, so I decided to wait and take advil.Good luck to you, I hope your doctor will listen and try and help you through this.