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Elevated ESR

I am a 39 year old female. four years ago, I experienced sudden blindness in one eye.  My vision slowly returned to an extent, but has never completely recovered.  At the time, I had a sed rate of 36, which I believe is a bit high for a 35 year old.  Two ophthalmologists examined me.  One thought I had a white dot syndrome, while the other thought I had a retinal artery occlusion.

After complaining to my doctor about an odd assortment of symptoms including severe swelling in both legs, light headedness, numbness, and a pins and needles feeling among others, she ordered a some blood work.  My sed rate result was 61.  After that, I returned for more blood work including another ESR test, rheumatoid factor, ANA, TSH and Iron +TIBC.  Everything came back fine except the Iron + TIBC (really low. 3% iron saturation) and my sed rate (60).  I recently had yet another round of blood work done, now about 2.5 months later, and now my sed rate is 65.  Is this extremely high?  Is this dangerous?  What are the possibilities?  I'm waiting on a referral to a rheumatologist, but the waiting is causing me to be more and more nervous.
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2143641 tn?1396678143
Your issue is probably Neurological, due to immunological issues.

You might have caught some strain Of influenza virus 4 years ago that triggered a autoimmune reaction. Do you remember having any flu or cold-like symptoms? Sinusitis? Pain and weakness in the limbs?

These issues are not easy to diagnose, we don't have the technology to do that but, in spite of that, some doctors may think that your problem is psychiatric or dismiss your symptoms as rheumathic.

I think that to be really exact u should be referred to a Neurologist, not Rheumathologist.

Anyways consider that these type of issues only rarely can be efficiently treated. (for example treatments to bring down your immune system, immune suppressants or treatments to rinse the blood from antibodies) and sometimes they can heal spontaneusly.

Do not dispair, until you are certain that you problem is chronic, it might regress by itself.
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I actually saw my neurologist first.  He didn't seem to think it was neurological.
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