A co-worker of mine sees a specialist in New York. Yes, it is difficult to get the right treatment. She is a nurse as well. She is on disabilty now. It can be very serious. If you have Lyme Disease, the TX can take a long time!
I have read that vasculitis is a known symptom of Lyme, along with many other things. It is a confusing disease made worse by unreliable testing and lack of awareness in both patients and doctors. That is great that you got a diagnosis you are confident in. You are welcome to come to the Lyme Disease forum. Tell us about how you found your doctor and your expected treatment plan. We love to compare notes!