left sided pain fatigue

[KELLY201]

I have become debilitated 1yr past November started with left arm pain, went to leg and face. sudden onset Admitted to hospital thought to be stroke. CT and MRI negative. Seen neurologist, immuolodist, stroke specialist, Rhumetologist. I have Haemochromatosis blood letting 4-5 monthly, Last level ferritin 28. MRI scan on back showed disc bulgesmild in neck curvature slight to right lumber and bulging discs at L4 and L5, posterial tear at L5. slight S1 compression. Blood tests normal low hydrocortisol but normal on repeat. Showed signs of inflamation awaiting repeats hence Rhumatologist. Also have memory problems, word finding difficulties, fatigue, brain closes down with complex stuff, switches off. Pain persists in left side body, some numbness, pins and needles sciatica. Some general joint pains in most large and small joints. Was trained nurse now lost job at a loss now what is happening to me aged 44. Next step pain clinic. suggested diagnoses eliminated, stroke, addisons, ME, back problems, Rhumatoid Arthritis.
Reported Report this Spam
Miscategorized
Abuse

[KELLY201]

seen pain specialist now more aware of illness, joint pain general due to haemochromatosis and this causes my fatigue memory problems.
left sided pain sensations probable minor stroke which hasn't showed up on scans possible inner core more sensory possible memory loss
back pain mechanical back pain, torn posterial tear years of nursing.
Result outcome Seen numerous specialists, pain specialist put into order.  probable long term no cure manage symptoms

[Dr. Kokil Mathur]

Hi
Thanks for keeping me posted!
You should probably get a repeat MRI of the upper cervical level. A bulging disc, sudden jerky movement of the neck etc can all cause similar pains.
Please discuss this with your doctor. Please let me know if there is any thing else and do keep me posted. Take care!

[KELLY201]

You are the second dr to link this the immuologist said the same. I am not convinced for two reasons.
1) it was a sudden onset whilst at work with severe pain down my left arm
2) I have been fortunate that i was able to catch my haemochromatosis early, my highest ferritin was 150 now at 28. would it have such an effect at this level. My father has it and he has had liver cancer and all other symptoms associated with it but his ferritin was 1500 understandable.
I would value your opinion,

[Dr. Kokil Mathur]

Hi
Thanks for writing to the forum!
Your symptoms could be due to hemochromatosis and its complications. You could be having peripheral neuropathy due to induced diabetes. Direct iron deposition in the spine and joints too can cause similar symptoms. There is a possibility of liver involvement and hence deficiency of Vitamin B12 and Vitamin D. You can go over similar possibilities with your treating doctor.
Hope this helps. Do let me know if there is any thing else and keep me posted. Take care!