There is nothing wrong with saying you might have IC. When you go for over five years not knowing what's wrong with you, an answer is an answer. Now you can get the help you need. It's not a death sentence! Why is that putting fear into people? I have IC and I'm fine. The Elmiron works pretty well, I take pain meds for the rest. Sure, I have all sorts of other problems, possiably related to the IC, maybe not? No one really knows because of the newness of the disease. There isn't a cure yet, it was only considered an actual disease by the CDC in 1986. Don't freak people out by acting like it's an awful thing to have! I'd rather have this than many other diseases out there if given a choice! It's treatable, you can control it, and you can deal with the annoyance physically and mentally with the right doctors. I know many, many people who live with this disease and they are living normal, active lives. Why would you think it would be scary to tell someone they should consider IC as an option to what's wrong with them? I hate living with this but at least I know what's wrong and I'm working on getting it fixed. It sound very much like like she could have it. The bloating is called the IC belly. We all get it. There is plenty of help out there and I'd hate to see her afraid to ask her doctor about it because you make it sound like it's the end of the world. Better to be educated and know then make assumptions and scare people. Oh, Elmiron is not that expensive. Yes, you cannot get a generic but you can get help paying for it. I pay 9 bucks a month with the help of my doctors.
I have to have a cystoscopy this coming Friday 18th January as a recent scan showed my bladder does not empty completely. Urologist said if tube leading into the bladder is narrowed he will give it a gentle stretch. Could they not have done that for you?
I get bloating and urinate a lot in the morning when I waken. When I drink a lot of fluids I get pain in my stomach and bloating. Can this be caused by bladder not emptying completely?
Not sure what type of doctors you've all seen, but bloating and frequent urination is what I feel when my bladder is too full. I had a cystoscopy about a year ago which showed I do not empty my bladder, and have had to self-catheter ever since.
THIS DOES NOT MEAN YOU HAVE IC AND DON'T LISTEN TO ANYONE WHO SAYS THAT....SHAME ON YOU FOR PUTTNG THAT FEAR INTO PEOPLE!
I have had these symptoms for almost 4 years and have seen every doctor, had every procedure and taken every drug.....but i do not have IC, as confirmed by many of the doctors. Looking into nerve based issues Neurogenic pain. Elmiron, by the way, does work for some people and does not have bad side effects. However, it is expensive. I know, i tried it.
See everyone you can; urologists, gynocologists, neurologists, and keep banging on doors. There can be a way out. No cure??? Pleeease. That is BS.
I have been having this problem for three months. I urinated at least 100 times a day literally. I have so much bladder pressure. I was prescribe elmorion, I do not want to take it because of the side effects, I just might because I'm tired of the pain. I have had every test there is, everything came back normal.
We all have interstitial cystis. Sorry there is no cure. What I usually take to relieve me at times. One tea spoon of apple cider vinegar and two table spoons of honey and fill the cup up with warm water. It works sometime but not all the times. I usually relieves me in 5min and comes back sometimes. I wish they would do a study on this. I know I do have herpes and never told anyone maybe this is a effect from have it. So if anyone has herpes come clean, we might be able to get some help. We must be honest with ourselves.
I'm not a doctor, but abdominal bloating and frequent urination in a woman would lead me to suggest a pelvic exam and pap smear; perhaps also a CA-125 test. Post this question for the doctor to answer for a professional opinion.
I have the same symptons...bladder pressure and I urinate alot- bloating but no UTI...I am 46 years old. Any answers or ideas