I have been having bladder pain for months and months now, it feels sort of like cystitis, but it isn't that.Every time I have my urine tested it has blood in it,epith cells, and sometimes protein. My doctor sent me for a bladder and kidney ultrasound scan and that came back o.k so he basically told me the pain must be in my mind! the pain is really bad and I have this sort of burning, full feeling in my vagina. I also have pain in the kidney area. I feel very, very unwell and the only thing I can say it feels like is when I had blood poisoning years ago after childbirth.
The odd thing is it gets much worse when I have been walking, I can be fine in the house then I walk up to the shop, carry a couple of bags of shopping home and I am in absolute agony.I have discovered that if, when I am in agony I lie down, within a couple of hours the pain subsides.
I have been reading various things that can go wrong, and wondered if it might be some sort of fistula? I had a vaginal hysterectomy years ago and also a bladder repair 7 years ago I have had 5 Children. Someone suggested that if it was a fistula and you inserted a tampon for two hours and it was wet, then that could be a sign of a fistula. I did this, and kept it in for two hours, took it out and it was soaking wet, and seemed to be dripping with urine. The only thing is that it says if you have a vaginal/bladder fistula that you would probably be incontinent and leaking urine through your vagina all the time, which I am not. the operation I had on my bladder was to cure incontinence though and I had that tape to hold my bladder up.
I am in so much pain and so confused as to whats wrong with me, but it is ruining my life. I am a single parent with two teenage boys at home to look after and its not fair on them to see their Mum in this state all the time.
Anybody who might have any ideas...please help.
Rosie