Endometriosis Symptons?

[VivDaGurl]

I've been diagnosed with endometriosis in July 2004 and the doctor found that my right fallopian tube was blocked and the right fallopian tube and right ovary lumped up together with the ones on the left, pushing my womb to the back of my body. Before the laproscopic, I've been having terrible pain at the back of my body when I menstruate.

Now, after the laproscopic, the pain at the back of my body got worsen. I don't feel like eating and I keep putting on weight like nobody's business. I also notice that my stomach is very bloated all the time and sometimes can be real big ('taller' than my breasts).

I don't know what to do and I've stopped seeing my O&G because she told me that she doesn't know what to do with me. It's pretty torturing with the horrible back ache and also the bloatedness in me. The pain can be real bad and I'll pop in Celebrex to get rid of the pain.

[VivDaGurl]

I just got discharged from the hospital due to the intense pain I had and the pain killer, Celebrex, didn't help. Now, the doctor told me to go on the pain killer everyday. The doctor wants to do another laparoscopy on me.

[greenpixie]

Go to www.endo-resolved.com.  See if that website offers any help to you.  I wish you luck.

[VivDaGurl]

babyhopes,

I live in Penang, Malaysia and I kinda of give up hope in getting a good doctor. Each time I go to the doctor, they give me the same answer and I don't feel like seeing any doctor anymore. :( Unless someone can refer me to a better doctor whom I can start to put my trust in again. Now, I'm having a terrible pain and I took Celebrex an hour ago but it's not really working in me...I wonder how long do I have to suffer the pain now...

[luv_babies]

AnnJ is right just because they clean out the endo once DOES NOT mean it won't grow back at all! There is no cure for endo and your dr should be going through treatment options with you, not brushing you off! Please find a new dr!! I was diagnosed with endo 3 years ago and I was givin all the treatment options at my post-op appt. Good Luck!!

[AnnJ]

At the very least, please check out the book Coping With Endometriosis, by Robert H. Phillips, Ph.D, and Glenda Motta, R.N. It has a wealth of information for anyone confused about endo. When you're finished with it, You may want to pass it on to your gynecologist. ;)

[babyhopes]

I was diagnosed with endo 6+ years ago, I have had two laporoscopies with laparotomy (removal) a three year stint on depo - provera and years on the pill. I still have trouble (but i am pg now, so it has helped) but I always knew when it was coming back, the pain once you have felt it is - is unmistakable. I am so sorry to hear your story, I had a terrifici OB-GYN and she helped me through it so much. It can come back and it can come back worse, a friend of mine had very similar symptoms to you and she found out it had "exploded" in her abdomen. I believe she meant it had just overgrown so quickly. when she had that surgery she had an ovary and fallopian tube removed b/c of damage (the tube was coiling around itself). I pray this is not the case for you but you MUST find a new Dr. I dont know where you live, but I am sure there is a fertility or woman's health clinic (they would at least be able to give you a name of a Dr. who is a specialist in this area)Best of luck, keep us posted!

[AnnJ]

That's not true according to the books I've read and people I know personally who have endometriosis. One of my closest friends has had to go back for laparoscopy and laparotomy surgeries several times. I would say at least 4 or 5 surgeries over the course of 8-10 years. Once, she had a mass the size of a grapefruit that had to be removed, and that was after she'd had other growths removed and the surgeon had "cleaned all the lesions out." Please find a different doctor. The one you are describing does not even sound like she attended medical school.

[VivDaGurl]

No, I didn't go for any ultrasound lately and all I know is that the pain is crazy. Whenever I see this O&G, she'll tell me, "OK, the measurement looks good and nothing serious." That's about it....and even if I complaint about the pain, she'll tell me that it's normal and just accept it. I did check with her the possibility that the endo had been accumulated and she told me that it's unlikely...usually, once removed, they hardly grow back again.

[AnnJ]

Find another OBGYN! Your doctor said she didn't know what to do with you and didn't refer you to another doctor? At the very least, that is just unprofessional. You could have a growing mass that needs to be removed. Have you had an ultrasound lately? Please find a better doctor. Good Luck.